The Buttie Family
Told by MarCi & Steve (parents)
Jill’s House has given us a “tribe”—a community of families who understand our world without explanation. There’s no judgment, just shared experience and support. Most importantly, Jill’s House doesn’t just care for our children—it’s like they celebrate them.
We’re Marci and Steve, parents to two incredible boys—Isaac (10) and Jacob (7). Both of our sons have complex medical needs. Isaac has Down syndrome and autism, and Jacob has Prader-Willi syndrome and autism. As we sometimes joke, our family could fill a “diagnosis bingo card”—but humor is one of the ways we keep ourselves going.
From the very beginning, our journey as parents has been intense. We knew before Isaac was born that he would have Down syndrome, but we didn’t expect how sick he would be. He spent weeks in the NICU and was so fragile that we didn’t know how long we would have him. When Jacob was born early, we faced another round of uncertainty, including hearing at one point that he might not survive.
Those early years shaped us. We quickly learned that advocacy would become a lifelong role and that “typical” parenting wasn’t our reality.
For a long time, we simply pushed through. We balanced two full-time careers, two medically complex children, endless therapies, feeding tubes, oxygen, and constant hospital visits. Life felt like survival mode. We didn’t have family nearby, and we weren’t used to asking for help. But eventually, we reached a point where something had to give. For the sake of our family, we made career changes and began to rethink how we could sustain this life long-term.
That’s when Jill’s House came into the picture. At first, we were hesitant. The idea of leaving our child—even for a weekend—was overwhelming. We worried about everything: What if they got sick? What if they couldn’t communicate their needs? What if something went wrong?
But we took a leap of faith.
That first weekend, we were on edge—but something amazing happened. We didn’t get a call. And we later learned that no news is good news.

Jill’s House is one of the greatest blessings in our lives. For our boys, it’s pure joy. Isaac loves playing basketball in the gym, and Jacob talks nonstop about Chapel, Adventure Heights, and even the elevator. They come home exhausted in the best possible way because they’ve been so engaged, so active, and so loved.
Even now, getting ready for a Jill’s House weekend takes strategy. Our boys love Jill’s House so much that we can’t even say the name out loud without them immediately getting excited and ready to go. So we’ve learned to operate a little “under the radar,” dropping off their special bed bags ahead of time, almost like a stealth mission, so they don’t spot them and start packing days early.
And for us, the impact is just as profound. It’s the ability to breathe. It’s having a conversation after church without interruption. It’s running errands together without a rigid schedule. It’s sitting in a quiet house. It’s going out to dinner for the first time in nearly a decade, even if it felt a little awkward at first.

It’s also something deeper. Jill’s House has given us a “tribe”—a community of families who understand our world without explanation. There’s no judgment, just shared experience and support. Most importantly, Jill’s House doesn’t just care for our children—it’s like they celebrate them. Every part of who our boys are feels seen, known, and loved. Jill’s House loves Isaac for Isaac, and Jacob for Jacob.
To those who support Jill’s House, please know that your generosity has a direct and tangible impact. It doesn’t just help our children—it strengthens us individually as parents and together as a couple. It gives parents like us the chance to rest, reconnect, and keep going.

Jaxon’s start was anything but easy. He caught Respiratory Syncytial Virus (RSV) shortly after he was born and spent about three months in the hospital. Doctors discovered holes in his heart, and at four months he had open-heart surgery. They warned us that his recovery could be prolonged because kids with Down syndrome often have low muscle tone. But within a week, he was back to being his wild little self.
When I pick Jaxon up from Jill’s House, sometimes he tells me to “go home” because he doesn’t want to leave. That secretly makes me happy. He usually falls asleep about ten minutes into the drive home, completely worn out in the best way.
I’m Kara, a single mom to two incredible kids: Eva, 15, who is a driven, compassionate big sister, and Johnny, 13, who is quite simply the center of our universe. Johnny is funny, loving, endlessly energetic, and almost always dressed in orange, his signature color. Around our house, we joke that it’s Johnny’s world and the rest of us just live in it—and, honestly, that’s pretty accurate.
Jill’s House has also provided me with community. Through parent support groups and retreats, I’ve found friends who understand without explanation—people who celebrate small victories and share in difficult moments. They’ve become our people, our family.

Elena loved her weekends at Jill’s House in Tysons and later experienced camp weekends at Blue Ridge, where she thrived being outdoors. Blue Ridge was her happy place—smaller, quieter, and full of exciting experiences like hayrides and visits from therapy dogs. She especially loved seeing the horses (from a safe distance—they’re a little too big for her taste!) and spending time with staff who shared her excitement and energy. She felt completely at home there.



Last September, Esha celebrated her 13th birthday at camp. I asked if I could send a cake and treats, and the staff said yes. They celebrated with her and sent me photos. When I showed her the pictures later, she smiled so big. Usually we celebrate birthdays at home, but this one was special—her “camp birthday.”






Alex has both intellectual and physical disabilities. He is medically complex and nonverbal, and he keeps us on our toes every single day. But more than anything, he is a joy and light of my life. His smile can brighten a room and his spirit is full of love.
From the very first visit Alex’s favorite thing at Jill’s House has been the bounce house. In fact, he loves it so much that his sign for Jill’s House is “jump.” He also loves playing basketball in the gym and coloring with the staff in the art room.
Our family is big, active, and social—exactly how we like it. There are five of us: my husband Joe and me, our daughter Gianna, and our twin boys, Vinny and Carmine. On summer evenings, we often cuddle in the backyard, with family and friends over for movie nights. We’re also huge soccer fans (Arsenal fans through and through), passionately following every match. We love being outdoors, soaking up the sun with good company.
From his very first weekend, Carmine dove right in—with no hesitation. As soon as we pulled into the lot, we were greeted warmly by the camp directors and counselors, who helped him get settled. Before we knew it, he was off. That made it so much easier on us, because we’ve always tried to follow his lead when it comes to new experiences.
For us, the weekends when Carmine is away are both respite and a gift of opportunity. Two nights of sleepovers might sound simple, but for families like ours, it’s priceless. Knowing he’s somewhere safe, understood, and completely himself gives us peace of mind. It also lets us spend uninterrupted time with Gianna and Vinny, go out with friends or just breathe for a moment.
My name is Teresa Mickles, and my son, JoJo—well, Rodney Jolyn Bass, but we call him JoJo at home—has been going to Jill’s House for almost 10 years. He’s 16 now, and let me tell you, Jill’s House has been one of the biggest blessings in our lives.


One of the biggest blessings we’ve encountered is Jill’s House. We heard about it through a friend and decided to give it a try, even though it’s over two hours away. From that very first visit, Kaelen loved it. He especially enjoys the pool, gym, and making new friends with his “buddies.”
