The Jacoby Family
Told by Brittany (Mom)
“Jill’s House has become a gift for our entire family. Henry gets an adventure that’s completely his own. Walker gets precious one-on-one time with us. My husband and I have the chance to rest and reconnect. “
If you meet my son Henry, the first thing you’d notice isn’t his diagnosis. You’d notice his smile.
Henry is 12 years old, and he’s a very happy boy. He loves people, loves adventures, and is always ready to go somewhere new. Whether it’s taking the train into downtown Chicago, riding the
water taxi, cheering on his older brother Walker at football and lacrosse tournaments, or simply going for a walk with our golden retriever, Otto, Henry is happiest when he’s out exploring the world.
Henry also has a rare genetic condition called FOXP1 syndrome. From the time he was a baby, we knew his journey would look different. He missed developmental milestones, and by age three, genetic testing gave us a diagnosis. Since then, our lives have been filled with school, therapies, and wonderful teachers and specialists who have helped him grow every step of the way.

Until last summer, though, there was one thing Henry had never done. He had never spent a night away from us. When another mom first told me about Windy City, Jill’s House camp in the greater Chicago area, I thought it sounded incredible. But I honestly couldn’t imagine Henry staying somewhere without us. Still, we decided to visit, met the staff, and eventually took a leap of faith.
I’ll never forget dropping him off for that first weekend at Windy City. As we pulled away, I remember thinking, Are you sure you’ve got him? Driving home, it suddenly hit me: for the first time in 411 years, Henry wasn’t with us.
Of course we missed him. But for the first time in a very long time, our family experienced something we hadn’t realized we needed. We went for walks. We enjoyed dinner together. We didn’t have our usual hour-long bedtime routine. We relaxed.

But what surprised me most wasn’t the respite. It was what Windy City gave Henry.
Walker has football, lacrosse, and friends. Like most teenagers, he has activities that are uniquely his. Henry’s world is different. Much of his life revolves around school, therapy, and home with me and my husband, Matt.
Windy City changed that. For the first time, Henry has something that’s completely his: his camp, his friends, his adventures.
Watching him share a room with other campers, climb the ropes course, ride boats, and simply be part of the group has been incredible. There were so many things he has done at camp that honestly surprised me. Every photo and every update showed me another way he was growing—socially, developmentally, and in confidence.
Henry communicates using a combination of verbal speech and a communication device, so he can’t always tell us everything he experienced at camp. That’s why those photos and updates mean so much. We sit together afterward, look through every picture, and watch his face light up as he relives each adventure.

Now, when another camp weekend is coming, Henry can hardly wait. He talks about it constantly. By the time we pull into camp, he’s so excited that he runs to join the group before I even have a chance to say goodbye.
Jill’s House has become a gift for our entire family. Henry gets an adventure that’s completely his own. Walker gets precious one-on-one time with us. My husband and I have the chance to rest and reconnect.
But more than anything, I’m grateful that Henry gets to do something that’s just plain fun. So much of his life is school and therapy. At the Windy City camp, he gets to make friends, try new things, build independence, and experience the simple joy of being a kid.
If you’re a parent who’s nervous about trying Jill’s House for the first time, I understand. I was too. But you’ll never know what your child is capable of until you give them the opportunity. I can’t overstate how grateful we are. Jill’s House gives our family something we couldn’t find anywhere else: respite for us, and for Henry, a place where he belongs.

As parents of a child with profound autism and intellectual disability, we had grown accustomed to settling. Most special needs programs meant well, but often felt like second-class experiences—converted office buildings, outdated facilities, endless paperwork, and the constant feeling that families like ours should simply be grateful for whatever was available.
One of our favorite possessions sits in a four-inch binder on our living room couch. Inside are years of “My Stay” summaries—one from nearly every visit Chris has ever made. The binder began as a simple folder, but it has grown along with his memories. Today, he flips through those pages constantly, reading about adventures with friends, favorite staff members, funny things that happened, and all the people who were “blessed to care for him.” Those reports aren’t just records of his visits—they’re reminders that he is known and truly and deeply loved.
Like many parents raising a child with significant needs, our lives revolved around appointments, therapies, school meetings, paperwork, and constant vigilance. Before Jill’s House, we honestly wondered if we’d ever have another weekend away together. Having trusted respite allowed us to reconnect as husband and wife, spend meaningful time with our daughter, and even care for Todd’s parents during his father’s battle with dementia. Knowing Chris wasn’t simply being supervised—but was genuinely happy—made all the difference.
Maddie always looks forward to telling us—and her sister, who now lives in Tennessee with her family—all about her stays, the people she spent time with, and the fun they had together. She usually sends us a text while she’s there to share something fun that happened. Then, the next morning, she walks out with what we affectionately call her “little entourage”—the care team who walks her to our car. Every single time, she comes out all smiles. During the weeks when Maddie isn’t going to Jill’s House, she’ll sometimes say the staff must be missing her, which is such a sweet reflection of how much she feels connected to them.
We’re Marci and Steve, parents to two incredible boys—Isaac (10) and Jacob (7). Both of our sons have complex medical needs. Isaac has Down syndrome and autism, and Jacob has Prader-Willi syndrome and autism. As we sometimes joke, our family could fill a “diagnosis bingo card”—but humor is one of the ways we keep ourselves going.

Jaxon’s start was anything but easy. He caught Respiratory Syncytial Virus (RSV) shortly after he was born and spent about three months in the hospital. Doctors discovered holes in his heart, and at four months he had open-heart surgery. They warned us that his recovery could be prolonged because kids with Down syndrome often have low muscle tone. But within a week, he was back to being his wild little self.
When I pick Jaxon up from Jill’s House, sometimes he tells me to “go home” because he doesn’t want to leave. That secretly makes me happy. He usually falls asleep about ten minutes into the drive home, completely worn out in the best way.
I’m Kara, a single mom to two incredible kids: Eva, 15, who is a driven, compassionate big sister, and Johnny, 13, who is quite simply the center of our universe. Johnny is funny, loving, endlessly energetic, and almost always dressed in orange, his signature color. Around our house, we joke that it’s Johnny’s world and the rest of us just live in it—and, honestly, that’s pretty accurate.
Jill’s House has also provided me with community. Through parent support groups and retreats, I’ve found friends who understand without explanation—people who celebrate small victories and share in difficult moments. They’ve become our people, our family.

Elena loved her weekends at Jill’s House in Tysons and later experienced camp weekends at Blue Ridge, where she thrived being outdoors. Blue Ridge was her happy place—smaller, quieter, and full of exciting experiences like hayrides and visits from therapy dogs. She especially loved seeing the horses (from a safe distance—they’re a little too big for her taste!) and spending time with staff who shared her excitement and energy. She felt completely at home there.



Last September, Esha celebrated her 13th birthday at camp. I asked if I could send a cake and treats, and the staff said yes. They celebrated with her and sent me photos. When I showed her the pictures later, she smiled so big. Usually we celebrate birthdays at home, but this one was special—her “camp birthday.”






Alex has both intellectual and physical disabilities. He is medically complex and nonverbal, and he keeps us on our toes every single day. But more than anything, he is a joy and light of my life. His smile can brighten a room and his spirit is full of love.
From the very first visit Alex’s favorite thing at Jill’s House has been the bounce house. In fact, he loves it so much that his sign for Jill’s House is “jump.” He also loves playing basketball in the gym and coloring with the staff in the art room.
