The Charles Family

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As told by Joy Charles

Jill’s House has been an integral part of our journey for many years. Knowing we have a place just for us is food for our souls!

When our boys were two and three years old, we received diagnoses that both had autism; our younger son, Teddy, also had an intellectual disability, and my husband was battling stage 4 prostate cancer. In those early years, between fighting for services for Teddy, fighting for my husband’s life, and fighting for my mental health, I felt like I couldn’t get on top of anything. Teddy would often elope, and we were always in a state of heightened alert. I didn’t feel like I could engage with the world in the same way other people did.

Teddy was in kindergarten when we learned about the disability waiver that would allow us to receive special services. I was exhausted and overwhelmed but completed the necessary paperwork with the help of the elementary school social worker, who also told us about Jill’s House.

I cautiously approached Jill’s House. I didn’t know what to expect and was very nervous. We were blown away by the tour, but I worried about how they would keep Teddy physically safe inside. I often say that physicality is his superpower; he could escape from anywhere! I didn’t know how he could possibly be kept safe.

When we entered the pool area during our tour, I was 100% sure Teddy was going to be denied access. Before we could blink an eye, he jumped into the pool fully clothed and swam to the center. The only thought that kept circling in my mind was how this would work. To my surprise, Teddy wasn’t denied access to Jill’s House!

Before Teddy’s first weekend stay at Jill’s House, we went to the store so he could pick out his own suitcase. He chose a Pokémon suitcase, which he still uses today! While Teddy was excited, I remained anxious. At drop-off, the team reassured me that I could call anytime to check on him. Of course, I did what any parent would do, and I called in the middle of the night, asking them to check in on him to make sure he was still in his room—and breathing. They lovingly addressed my concerns, and over time, I have grown more confident that he is safe at Jill’s House. I have learned to trust them and let go, and now we all look forward to our weekends.

Jill’s House has been an integral part of our journey for many years. Teddy feels welcomed and loved, and I have formed beautiful friendships with other moms. For parents of children with special needs, we often pass each other like planets in orbit, and rarely have a chance to connect. However, Jill’s House has worked hard to foster a sense of community among us. Knowing we have a place just for us is food for our souls!

I derive immense joy from Teddy and his zest for life! Whether he is feeding the wildlife in our backyard or joyfully watching the animals play, he is a happy kid. His heart is pure, and I am so grateful to be his mom.

We lost their father, and sadly, much of my boys’ lives have been overshadowed by cancer. I now honor my husband’s legacy by advocating for my boys and other children, believing that our world is a better place because of our kids!

The Zwiebel Family

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As told by Andrew & Kate Zwiebel

Jill’s House Weekend Adventure Camp is a place where Jack can be Jack, and we are so grateful that he has a place where he is welcomed and loved!

Jack…is…awesome! He is such a good-humored, curious, and good-natured kid. He makes us laugh a lot, like when he randomly puts on his blow-up dinosaur costume! He will often play jokes on us too, like playing hide-n-seek in construction equipment while we’re on neighborhood walks.

We were married in Lake Tahoe, Nevada, while living in San Francisco, and shortly after our oldest was born, we moved to Seattle, Washington. Although the move to Seattle meant leaving family and starting a new adventure, we felt God’s presence and have continued to feel His presence throughout our family’s journey.

When I was pregnant with Jack, I remember thinking there was something different. When Jack was born, he was unable to pass the infant hearing test while in the hospital. He also had feeding and nervous system issues. We knew that early intervention was very important for Jack, so by the time he was 4 months old, he was undergoing PT, OT, and speech therapy. He also had strabismus and underwent two surgeries to correct his vision. We were hopeful that these interventions would correct his balance and motor issues, but he was still unable to hit some of his milestones.

After a few years of genetic testing and no findings, we were introduced to a new genetic test that ultimately provided us with the answers we had been searching for. Upon receiving the test results, we learned that Jack had a change on the FOXP1 gene. The way it was described to us was that this change is equivalent to having a single misspelled word in a whole set of encyclopedias. We were also told that, at that time, Jack was the only kid on record with this genetic abnormality. We were shocked! Although there was not a lot known about the FOXP1 gene, we were told that the only physician in the world studying it was located near us, at Seattle Children’s Hospital!! Talk about God’s provision for our family.

We were so encouraged and relieved to finally have some answers! We are both athletes, so when we received Jack’s diagnosis, we kept saying he was going to “Varsity FOXP1.”  Soon after, we became involved with The University of Washington’s Haring Center for Inclusive Education and early childhood intervention for children with and without disabilities— ultimately, a community of like-minded families and teachers we have grown to love. This is the community that led us to Jill’s House.

Jill’s House has allowed us to further explore the extension of a community we were already a part of, while offering safe independence for Jack through overnight camp experiences. We were pleased to know that Jack would probably attend camp with friends that he had already made through our involvement with Haring Center, but also be able to make new friends. Additionally, the religious core and mission of Jill’s House were also very important to us.

Jack has been consistently going to camp for 3 years. He loves hanging out with Jill’s House staff for the weekend, and he talks about being able to stay in his own room! At the end of a weekend at camp, he comes home tired, which means he’s also engaging in all the activities!

There are so many dimensions to camp! From archery and horseback riding to paintball and all kinds of games, there are so many great activities for the kids that are, quite frankly, hard to replicate at home. Camp provides Jack with a ton of experiences that help build his confidence and his skills—even an opportunity to show off his blow-up dinosaur costume in the camp talent show!

The first time Jack went to camp, we didn’t know what to expect or how to prepare for our weekend without him. Over time, we have realized how valuable and important respite really is, to spend time with our other children and with each other. We all look forward to those weekends now!

There have been so many God-moments throughout our journey. Jill’s House Weekend Adventure Camp is an important part of our journey and a place where Jack truly belongs.

The Adams-Nagel Family

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As told by Jan Adams

“Never will I leave you; never will I forsake you.” Hebrews 13:5

Nico was born in Guatemala and entered our family through adoption when he was 6 months old. We were excited to welcome a baby into the world, but when we couldn’t conceive a child naturally or through multiple fertility treatments, we knew that adoption would be how our family would grow. Our process of adoption from Guatemala was so uncommon and totally orchestrated by God. Our names were added to a list, and we were emailed pictures and details of children seeking a forever home. For several months we received emails from the listserv, then in March 2007, we received an email with a picture of the sweetest little one-month-old baby boy. We knew instantaneously that we wanted to meet him and bring him home! We arranged to visit Guatemala and meet him in July 2007, and he came home with us on a Medical Emergency VISA in August 2007.

Nico was very ill. He was medically fragile and needed urgent care which we located in the DC area before we brought him home. He was born with severe pulmonic stenosis and had his first surgery within days of being home. He was diagnosed with failure to thrive and had plagiocephaly which required 4 rounds of Doc Band treatments. He received OT to help with the formation and use of his mouth as well as PT due to his hypotonia.  He is on the Autism spectrum.  He has hearing loss and wears bilateral hearing aids, and significant vision loss so he wears corrective lenses. Nico has Noonan Syndrome and femoral anteversion as well.

I had to leave my career in telecommunications in 2007 because I was taking Nico to 7-9 appointments a week. I fought, and still fight for Nico to receive the best care, services, and opportunities to thrive.

Before we adopted Nico, we used to volunteer with Access Ministries (a ministry for children with special needs) at McLean Bible Church. In fact, as a volunteer at MBC, I cared for Lon and Brenda Solomon’s daughter, Jill, whom Jill’s House is named after!  We remember the years of preliminary work that were so instrumental in building Jill’s House. God was working in and through our lives in preparation for Nico, long before he was even born!

When Nico turned 6 years old, we were excited to register him at Jill’s House. With no family to help in the area and having a special needs child that made staying with a typical sitter or overnight with a friend, a non-option, Jill’s House was THE OPTION.

We met and trusted the staff so much, and I knew they would love and care for him as I did. Jill’s House was going to provide Nico with his very own experiences and opportunities. Eleven years later, we have wonderful caregivers who have been a part of Nico’s life and will never be forgotten.

Between scheduling doctors’ appointments, communications with Nico’s education team (teachers, therapists, specialists), maintaining the care schedule at home, and managing my full-time work, it is hard to relax. I am also a single mom, so there’s hardly ever a moment I am fully relaxed. But the school nights when Nico is at Jill’s House are a huge blessing! It is nice to have a break during the week when I don’t have to think about meals or the schedule, I can unwind, or work a few extra hours if I need to. Those nights are such a gift. But truly, the gift is for Nico. Where else would a kid have the opportunity to swim in an indoor pool before dinner on a school night?!

Nico thrives with a schedule and when he knows what to expect. When the Jill’s House bus arrives at school, he is excited to climb on and greet his friends, and he anticipates all the fun he’ll have when they arrive at Jill’s House. At Jill’s House, Nico gets to build relationships with kids and have fun with the staff and volunteers. Jill’s House staff and volunteers treat him like a typical child. They treat him with honor and respect, and the special child he is!

Our life is very complicated! So overnight respite is truly what I need. Jill’s House helps me to relax. There are very few places where Nico feels comfortable, safe, and loved unconditionally. Jill’s House is one that truly gives me the freedom to pause, breathe, and relax.

The Damm Family

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As told by Nadia and Joe Damm

 

Jill’s House is a gift from God. We can’t believe we get to enjoy it multiple weekends a year! We are so grateful that this is something our family can benefit from for years to come. Thank you, Jill’s House!

Before we had our children, we befriended a woman who has since become Alyssa’s volunteer Buddy at Windy City camp. This dear woman would share her experiences as a camp volunteer, and it always amazed us that people like her were willing to give up their weekends in that way! It was by God’s grace that this sweet woman entered our lives almost 16 years ago.

We have had a variety of experiences raising a daughter with Down syndrome. From doctors who didn’t see the value of life and encouraged us to terminate the pregnancy to inconsistent and challenging respite services, at times, it seemed as if the world did not want Alyssa here. At least, that’s how we felt. But we have also encountered many people who genuinely love our daughter, and Jill’s House offers that to our family!

Alyssa’s siblings have enjoyed going to camp for years, and Alyssa began asking for the same experience. We kept hearing about Jill’s House from our friend who volunteers there, and since Alyssa, at nine years old, seemed to be at the right age, we decided she was ready to go.

Though the intake process took a while, it was extremely comforting and helped in building our trust. Indeed, an immense amount of trust was required to place our child in someone else’s care. All the questions we were asked made us feel like they understood our daughter, and nothing excluded her from participating in camp. Through the whole process, I gained a new perspective on our lives and what we work through day to day with Alyssa. Although we felt reluctant about entrusting her to someone else, aware of what goes into caring for our child, every detail about Alyssa was taken into thoughtful consideration by Jill’s House, and they were excited to have her at camp.

Alyssa is adventurous and outgoing. During our Meet and Greet before her camp weekend, she toured the grounds, saw where she would sleep, explored the activity spaces, and enjoyed the outdoor activities. She was excited for camp and raring to go!

When her first Jill’s House weekend arrived, the whole family dropped Alyssa off at camp. Her brother and sister really wanted to see where Alyssa would be staying. We also decided to stay near the camp that weekend. We relaxed, lingered, and just talked. We gave one another time to share. We couldn’t believe how much we all relaxed and bonded. The weekend was amazing! Our older kids kept saying how much they needed it!

Alyssa had a fantastic time at camp, too. While she is outgoing, she still feels her way through every situation. We were so happy to learn that she enjoyed playing with her Buddy and our good friend the whole weekend! She picked up on cues that everyone there was happy to have her, and she felt safe. She was given choices, and she thrived!

At the end of the weekend, we were all so excited to be together again! Alyssa came home wanting to say grace at mealtime and share the devotionals and prayers they said at camp. We all felt refreshed and renewed; it was just the right amount to reset.

The Nelson Family

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As told by Christopher Nelson, Emily’s Dad

 

Anytime something is thrown at us or spilled on me, I stop and laugh, “Alright, God, I probably had that coming!” In some subtle way, albeit sometimes messy, it’s a reminder for me to not be angry or too serious and just enjoy life. I’m so grateful that God chose me to be Emily’s dad, and I’ll take whatever days God gives me!

Emily has her mother’s straight hair and my love for ‘80s and ‘90s music! Emily sticks close to her mom, but she knows I’m always ready for her when she is hungry for a snack or looking for some fun. If you were to drive through our neighborhood, you might catch Emily and me cruising around in our golf cart. I’m sure it’s a funny sight. This big burly guy cruising in a golf cart while Emily’s favorite song is playing over the speakers, “Girls Just Want to Have Fun,” by Cyndi Lauper. Cruising around on the golf cart while listening to her favorite music playing, with her hair blowing in the wind, is one of Emily’s favorite things.

Emily was born in March 2003 and was diagnosed with Microcephaly when she was an infant. We were told that she would be epileptic, and sure enough, she had her first seizure in 2004. She was in and out of the hospital with bad bouts of epilepsy. I wouldn’t wish that experience on any parent. You feel helpless when your child has a seizure, and you can’t do anything about it. I’m a Gulf War Vet, but those moments when Emily was experiencing a seizure were the worst moments of my life.

By 2013, when Emily was ten years old, our doctor said, “I know this is scary, Mom and Dad, but we want Emily to have an opportunity to be medication-free.” Our doctor wanted to wean Emily off the medications that were keeping her from having seizures. It was scary! But by the grace of God, she hasn’t had a seizure since then.

We found out about Jill’s House when Emily was 14 years old. She has since aged out of the program, but she was able to enjoy weekends at Jill’s House for three years. We will forever be grateful for how Jill’s House lovingly cared for our daughter. We always knew she was being cared for and in a great place! At drop-off time, we were relaxed, and she would eagerly walk into Jill’s House. At pick-up time, although she was excited to see us, she would continue to look over her shoulder as if to say, “I want to stay!” For someone who didn’t say a lot, her actions spoke volumes!

Although Emily no longer attends Jill’s House, I still connect with other dads of Jill’s House kids. The camaraderie we find in Christ and the ways we are being fortified as men and fathers mean so much!

I pray for the most fulfilled, safest life possible for Emily. She knows no hatred. She knows no fear. Other than the fear of not having enough french fries. She loves french fries! But I wish people could live like her. What gets me is that God chose me to be her dad! Anytime something is thrown at us or spilled on me, I stop and laugh, “Alright, God, I probably had that coming!” In some subtle way, albeit sometimes messy, it’s a reminder for me to not be angry or too serious and just enjoy life. I’m so grateful that God chose me to be Emily’s dad, and I’ll take whatever days God gives me!

The Levine Family Story

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As told by Pam and Jesse Levine

 

To have Jill’s House available when before you had nothing, and then to have people who are so empathetic and gentle with your child. . . you can’t ask for anything more!

We always knew that we would adopt a child. Even when we were young and dating, we talked about adoption. We brought our first daughter home from China and quickly pursued adopting another girl so that the girls would each have a sister. Then after a couple of years, we adopted Jax!

We adopted Jax when he was three years old. We knew it would take some time for him to become acclimated to our family and to America. He had been in a Chinese orphanage for the first three years of his life. We noticed some developmental delays, but over time, we realized that there was more going on than just difficulty in adjusting to life with us. Originally, he was diagnosed with ADHD. Then after displaying further signs of delay, he received an intellectual disability diagnosis when he was about five years old.

As a family, we say, “Everything is figure-out-able.” We have moved a lot; we have faced frequent health concerns. We have received unexpected diagnoses, but we have always been able to figure it all out. We knew that no matter what we were facing with Jax, that we would be able to figure it out together!

Over the years we have had attendants to help with Jax after school, or for a few hours on a weekend, but we never had a full weekend of help or respite. As Jax grew older and we experienced new challenges, we also began to grow weary of finding relationships and activities for him to gain independence and help develop his social skills. One day, my husband did a Google search and discovered Jill’s House! We’ve never lived near family, and we always felt nervous about leaving the kids with anyone. But Jax would hear other kids talk about overnight sleepovers at a friend’s house, and he would ask if he could have those same experiences.

We decided to complete the paperwork for Jill’s House. Before Jax had his first overnight there, we were invited to the Jill’s House Family Christmas Party. We were able to see other families, and I was able to meet other Jill’s House moms. I enjoyed chatting with them and felt comfortable asking my burning question, which was, “Is it really safe there?” I wasn’t sure if Jax could verbalize if things weren’t right, and I was nervous. The moms understood my concerns without judgement and plainly said, “We’ve been here for 12 years, and it’s the safest place for our kids!” These moms explained that there are so many eyes on the kids while they are at Jill’s House, between the nurses and the program staff, and that it is just as safe as my own home!

Jax finally had his first weekend at Jill’s House in January. We were so nervous! We let him take his phone so he could text us at any time. The first night, he sent us a text saying, “Good night. I love Jill’s House!” We were so excited. The next day, he ignored us! We sent him a text in the morning, and again in the afternoon, but we never heard back from him. We decided to call later that afternoon just to see if he was okay and ask if his phone had been taken away. The supervisor shared that Jax was having a great time. He was busy, engaged in fun activities and was doing great! We were relieved, and we were finally able to fully relax! Now, when we drop him off, he barely says goodbye before jumping out of the car.

We attended the Family Retreat and had such a great time! Seeing the other Jill’s House families and knowing that, even though our families are all different, we all face some of the same things, was awesome! We were able to connect with other parents and get to know the staff even better. Jax also had such a great time with the staff. He really loves them!

Jax is going to high school next year and is very excited. He is part of a teen boy’s group with Boys and Girls Club of America, but he says his favorite activity is going to Jill’s House, where he feels so loved and welcomed! To have Jill’s House available when before you had nothing, and then to have people who are so empathetic and gentle with your child. . . you can’t ask for anything more.

 

The Butler Family

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As told by Maura and Christopher Butler

 

Life can get messy, full, and tough, but at Jill’s House, we can rest assured our special kids are treated with dignity, respect, and love. This blesses our whole family. It is incredible!

When Dorothy was born, we weren’t aware she would have special needs, but my maternal instincts were telling me that something was different. When she was about six months old and not able to sit up, I brought my concerns to our pediatrician. I was encouraged not to worry and was told that each child develops at a different pace. But when Dorothy was almost one year old and only barely able to sit but certainly not crawl, I became her advocate. I educated myself about terms such as “low muscle tone,” “occupational therapy,” and “speech therapy.” I had never heard of a developmental pediatrician but learned and then fought for her to be seen by one.

As grateful as we were to be on a path with both a new pediatrician who listened to my concerns and a developmental pediatrician, we still didn’t have a diagnosis for Dorothy. She was receiving medical care, multiple therapies, and undergoing dozens of tests, and we discussed a variety of treatment options, but there was no clear diagnosis. I continued to advocate for Dorothy through this difficult season. (I’ve never really stopped.) I trusted that the Lord was in control and certainly grew in faith without knowing what Dorothy’s diagnosis was. Abandoning my earthly desires “to know” was not a one-time act of will; it was put on repeat.

When Dorothy was nine years old, we were finally able to understand the unique way in which God had knit Dorothy together. Through genetic testing, we discovered that Dorothy has Mowat–Wilson syndrome, a rare genetic condition with only a few hundred known cases worldwide. The moment I was told her diagnosis, I was overcome with joy. We couldn’t help but praise God. Our joy might not have made sense to our medical team, but we had been searching for answers for nine years, and in a way, I felt like God had blessed us for our faithfulness.

God made Dorothy intentionally and on purpose, without mistakes or hiccups. Dorothy has a role to play in salvation history that only she can fulfill, and Mowat–Wilson syndrome is part of that story.

Jill’s House is also part of the story!

We found out about Jill’s House from a family at Dorothy’s elementary school. We didn’t have support or family nearby, and we were tired. I remember freaking out during her first weekend overnight stay. I called many times, and I kept thinking, “Who needs respite from her own child?!” A woman I didn’t know very well (we have since become friends) had come to our home for a mom’s group that weekend, and she helped me understand that my children, including Dorothy, needed respite, too. Dorothy needing respite from us hadn’t crossed my mind. When I began to consider how Jill’s House was providing a time of respite for our whole family, it radically changed my perspective.

While Dorothy is at Jill’s House, we plan activities our other five children do not get to do otherwise. Our kids don’t feel that Dorothy needs to be somewhere else so they can have a good time. On the contrary, they feel free to have fun because they know she is having a blast at Jill’s House! Dorothy is so happy at Jill’s House; she wants to go there, she has friends there, and she gets to do things she loves with wonderful people.

The constant vigilance one must have on a child with special needs gets exhausting, not in an exasperating way, but mentally and physically exhausting. While Dorothy is at Jill’s House, though we may be involved in busy activities, I feel relaxed. That is what respite is! Several years ago, I sat on a panel discussion with other Jill’s House moms, and I remember all of us shared that other than Jill’s House, we had nowhere else for respite. I am so grateful for the impact Jill’s House has had on so many families!

The Farrell Family

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Told by Sean and Jenee Farrell

For Sam, Jill’s House Rocky Top Camp in Nashville is the happiest place on the planet! It’s his most favorite place to be.

Sam has been attending Jill’s House Weekend Adventures Camp since he was 12 years old. We started exploring different day camps and programs for Sam long before we sent him to Jill’s House. We wanted him to experience the youth church programs that meant a lot to us during our own childhood. However, we went through some frustrating experiences when Sam was turned away from other programs that couldn’t accommodate him. It was heartbreaking!

When we first heard about Jill’s House, we had obvious concerns. But when we met with the Local Program Manager, we were very impressed by the depth of her questions and her interest in Sam and his motivations. We were relieved to hear that Sam would be welcomed, cared for, and kept happy.

Sam is very social and loves to be active. He has a huge heart and a great sense of humor. He loves water slides, roller coasters, music, and dancing. He enjoys helping in the kitchen and likes knowing that he’s done something well. Although we were sure that camp would be a great experience for him, we were still cautiously optimistic.

When the first weekend arrived, we anxiously waited for the phone call asking us to pick him up—the call to tell us that they could no longer accommodate Sam. This is what we had been used to. But the call never came! Then, when we picked Sam up at the end of the weekend, he was radiating happiness. Pictures of him from that weekend—and those of many others he’s attended since then—show him with the biggest smile and a constant look of pure joy. We finally found what we had been looking for!

Sam excels in an environment that is set up specifically for him. Inclusivity is good too, for many reasons. But Sam thrives better in an environment that is designed just for him, and Jill’s House offers that experience. Everything that Jill’s House offers has been designed with him and other kids like him in mind.

Once we realized that Sam was going to be comfortable and accepted at Jill’s House, we felt immense gratitude, as if we had all been given the most tremendous gift.

Having a child with special needs can be difficult. We know Sam’s younger brother also feels that. But we also see how our family has grown in being compassionate and understanding of one another, and other families too. While Sam is at Jill’s House, we have been able to use the opportunity to connect in our marriage and take our younger son to activities that don’t interest Sam.

Sam is now 17 years old and will graduate from high school this spring. During the fall, he will move into vocational training, where he will continue to develop skills for employment. He enjoys helping in the school cafeteria and also works in the school store. Sam has a big heart and even bigger enthusiasm. He’s a popular guy wherever he goes!

When Sam comes home from camp, he will go through the whole list of foods he ate and the activities he did. And he would always ask to return! We have so many emotions as we consider this next chapter in Sam’s life. We are excited, yet we also feel sad that his time at Jill’s House is coming to an end. We will always be grateful for Jill’s House and the incredibly passionate staff at Jill’s House and Camp Rocky Top!

 

The Hansen Family

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Told by Grant and Julie Hansen

Olivia is 11 years old! She loves to be with people and socialize. She participates in her cheer team, plays all kinds of sports, and is a member of our local Girl Scouts and Cub Scouts troops. She also loves going out to eat and cooking food at home. She would say her least favorite thing is feeling bored, so we try to fill her days with activities she enjoys!

Olivia also loves being around people. Before she could even talk, she would manage to put herself in the middle of other kids while playing. As social as she is now, you wouldn’t be able to guess that she didn’t begin talking until after her 5th birthday!

We heard about Jill’s House from a Facebook group for parents who have children with autism. A parent mentioned that she had sent her son to Jill’s House, and he had a great time there. We had looked into other overnight opportunities for Olivia, but they either were week-long camps that we knew wouldn’t be a good fit for her or just didn’t feel right to us. However, Jill’s House and the local Garden State weekend camp were exactly what we were looking for!

Eventually, we were able to visit the camp and knew right away that it would be the perfect experience for Olivia. We wanted her to feel confident that she could be without us and still be okay. The Garden State Local Program Manager made us feel so comfortable! We were even told that if Olivia needed to talk to us at any time during her first stay, the staff would allow her to call home. But her first stay at Garden State camp was a perfect experience for her, and we didn’t hear from her at all!

Finding support is challenging. Olivia’s weekend away at camp was the first time we were alone in 11 years. We were so excited to have this time together that we probably stacked our weekend with too many fun things, but it was very special for us. The best part of our weekend by far was knowing that Olivia was safe and having a great time.

When we picked Olivia up at the end of the weekend, she got in the car and kept asking us when she could go back. Although she doesn’t share a lot of details about her time at camp, we learned that her favorite activity was the zip line, which she was able to ride twice. She also enjoyed playing in the pool and loved having a sleepover with her friend in the cabin.

We are truly grateful for Jill’s House. We think it’s amazing that Olivia has had this opportunity and that Jill’s House allows her to thrive in a safe environment among other kids. Now that her needs for social interaction with her friends are being met, it is helping her grow socially and our comfort level has grown too, because we know that Olivia will be ok.

We love Jill’s House so much!

The Sullivan Family

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Told by Sarah Sullivan

When our first child was born, we were living in California. Shortly after she was born, I stopped working, and we decided to move into my parent’s home in Illinois. We had planned to stay with them for a short time, so we could save some money. But then Kate was born, and our plans changed.

When I was pregnant with Kate, we decided not to do any prenatal testing but we had ultrasounds throughout the pregnancy. I remember during one ultrasound the lab technician took extra time looking at the space where her heart was, but we were not told about any problems. Kate was born with two holes in her heart and she was also diagnosed with Down syndrome. She had to undergo open-heart surgery when she was just three months old; then a pacemaker had to be put in, as some complications occurred because of the surgery. She was in the hospital for two weeks! Gratefully, we were with my parents during that time as they helped with taking care of our older daughter. God knew what we needed when He moved us to Illinois!

I had studied early child development before our first child was born and worked with kids with special needs—even those with Down syndrome, but we didn’t know what Kate’s diagnosis would mean for her or our family. Looking back, I believe God was preparing me for Kate, and I think God knew that I needed to see her and hold her in my arms before we received the diagnosis.

Those first few years of her life were filled with so many visits to doctors. At one point, she had eight different doctors! She is quite healthy now and doing very well.

In Illinois, Kate was involved in a program for children with Down syndrome, where she received most of her early support. The program was so wonderful and it offered profound encouragement to her and our family! I remember thinking about how much we were going to miss the program when we moved to Virginia after a few years. But then when we moved to Virginia, we found Jill’s House!

When I first learned about Jill’s House, I visited their website and read Brenda’s testimony there. I remember being so touched by her words! In her testimony, Brenda shared about their busy life with their older boys, and when Jill was born and later developed very special needs, she felt she couldn’t leave Jill’s side. They were all in desperate need of rest, but Brenda prayed that God would use Jill’s life for a greater purpose. When I read her words, all I could think was that when Jill was born, God was also thinking about Kate, our family, and all the other families that are being served by Jill’s House today. God is sovereign over all, and I’m so thankful to Lon and Brenda for their faithfulness in trusting The Lord with Jill’s life.

God IS good, and He has a plan! Life can be hard, and we don’t always understand what is happening, but when you step back and trust that He is faithful, you can see that He is working. Brenda’s words really touched my heart and helped me to trust that God is working in our lives too.

Kate started going to Jill’s House when she turned six years old and has been going there for the last 10 years. When she was younger, Kate was quite active. So, we found it hard to do our daily chores or even take her to the park. We would often avoid engaging in certain outings as a family because it was such a challenge. Kate is 16 years old now and full of life! She has a wonderful sense of humor, and she loves her family. She enjoys going out to eat, playing basketball, and putting on dance shows (for us) at home and Jill’s House.

Kids with special needs might be overwhelming or intimidating to some people. But everyone at Jill’s House sees these kids for who they are. God doesn’t make mistakes, and He has a plan for every single person on this planet. Everyone at Jill’s House seems to know that; they embrace that, and they love and serve our kids and families so beautifully! Also, from a practical standpoint, we can truly rest knowing that while Kate is in Jill’s House, there are on-duty nurses and excellent staff to tend to her medical needs and any situation that may arise. Everything about Jill’s House is such a blessing to our family!