The Buttie Family

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Told by MarCi & Steve (parents)

Jill’s House has given us a “tribe”—a community of families who understand our world without explanation. There’s no judgment, just shared experience and support. Most importantly, Jill’s House doesn’t just care for our children—it’s like they celebrate them.

We’re Marci and Steve, parents to two incredible boys—Isaac (10) and Jacob (7). Both of our sons have complex medical needs. Isaac has Down syndrome and autism, and Jacob has Prader-Willi syndrome and autism. As we sometimes joke, our family could fill a “diagnosis bingo card”—but humor is one of the ways we keep ourselves going.

From the very beginning, our journey as parents has been intense. We knew before Isaac was born that he would have Down syndrome, but we didn’t expect how sick he would be. He spent weeks in the NICU and was so fragile that we didn’t know how long we would have him. When Jacob was born early, we faced another round of uncertainty, including hearing at one point that he might not survive.

Those early years shaped us. We quickly learned that advocacy would become a lifelong role and that “typical” parenting wasn’t our reality.

For a long time, we simply pushed through. We balanced two full-time careers, two medically complex children, endless therapies, feeding tubes, oxygen, and constant hospital visits. Life felt like survival mode. We didn’t have family nearby, and we weren’t used to asking for help. But eventually, we reached a point where something had to give. For the sake of our family, we made career changes and began to rethink how we could sustain this life long-term.

That’s when Jill’s House came into the picture. At first, we were hesitant. The idea of leaving our child—even for a weekend—was overwhelming. We worried about everything: What if they got sick? What if they couldn’t communicate their needs? What if something went wrong?

But we took a leap of faith.

That first weekend, we were on edge—but something amazing happened. We didn’t get a call. And we later learned that no news is good news.

Jill’s House is one of the greatest blessings in our lives. For our boys, it’s pure joy. Isaac loves playing basketball in the gym, and Jacob talks nonstop about Chapel, Adventure Heights, and even the elevator. They come home exhausted in the best possible way because they’ve been so engaged, so active, and so loved.

Even now, getting ready for a Jill’s House weekend takes strategy. Our boys love Jill’s House so much that we can’t even say the name out loud without them immediately getting excited and ready to go. So we’ve learned to operate a little “under the radar,” dropping off their special bed bags ahead of time, almost like a stealth mission, so they don’t spot them and start packing days early.

And for us, the impact is just as profound. It’s the ability to breathe. It’s having a conversation after church without interruption. It’s running errands together without a rigid schedule. It’s sitting in a quiet house. It’s going out to dinner for the first time in nearly a decade, even if it felt a little awkward at first.

It’s also something deeper. Jill’s House has given us a “tribe”—a community of families who understand our world without explanation. There’s no judgment, just shared experience and support. Most importantly, Jill’s House doesn’t just care for our children—it’s like they celebrate them. Every part of who our boys are feels seen, known, and loved. Jill’s House loves Isaac for Isaac, and Jacob for Jacob.

To those who support Jill’s House, please know that your generosity has a direct and tangible impact. It doesn’t just help our children—it strengthens us individually as parents and together as a couple. It gives parents like us the chance to rest, reconnect, and keep going.

 

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The Green Family

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Told by Kara (Mom)

I expected Jill’s House to give me rest. What I didn’t expect was that it would become my son’s favorite place in the world.

Life has a way of taking unexpected turns.

I’m Kara, a single mom to two incredible kids: Eva, 15, who is a driven, compassionate big sister, and Johnny, 13, who is quite simply the center of our universe. Johnny is funny, loving, endlessly energetic, and almost always dressed in orange, his signature color. Around our house, we joke that it’s Johnny’s world and the rest of us just live in it—and, honestly, that’s pretty accurate.

When Johnny was two and a half, everything changed. He suffered a traumatic brain injury. In those first terrifying moments, I was just grateful he survived. What followed was something doctors still can’t fully explain. Johnny’s recovery—his resilience, his progress, and his very presence—is nothing short of miraculous. Still, we were told he would never develop beyond the level of a nine-year-old and would always require full-time care—my full-time care.

The dreams I once had for my life shifted overnight. I had once imagined becoming the first female president of the United States. Now, my world revolved around doctor’s appointments, therapies, IEP meetings, and constant vigilance. Every day starts early and moves quickly. There are good days and very hard days. As Johnny grew, the weight of doing everything alone became overwhelming. I couldn’t take my eyes off him, not even long enough to take a shower.

During one particularly long, exhausting weekend, I found myself searching online late at night, unsure of what I was even looking for—just hoping there might be something, anything, that could help.

That’s when I found Jill’s House.

Even though I desperately needed rest, the thought of leaving Johnny somewhere was terrifying. Would anyone else know how to care for him? Would they see only his challenges, or would they recognize the abundant love and joy in his heart?

But Jill’s House is different. Every single person there loves him exactly as he is. They truly see him and delight in him. Much of Johnny’s life is spent in environments focused on his progress—school, occupational therapy, feeding therapy, and behavior therapy—but at Jill’s House, they meet him right where he is and love him fully in that space.

While at Jill ’s House, Johnny’s first stop is always the playground. He loves riding the bikes and setting up races and “parades” with as many people as he can gather.

I expected Jill’s House to give me rest. What I didn’t expect was that it would become my son’s favorite place in the world. Johnny was once asked if he’d rather go to Disney World or Jill’s House, and he chose Jill’s House. This is a child who dressed as Mickey Mouse for twelve straight Halloweens. When I pick Johnny up after a Jill’s House stay, he asks if he can stay for 100 days.

Johnny doesn’t get invited to birthday parties or sleepovers. Jill’s House is his place to belong, to be celebrated, and to have fun.

For Eva and me, Jill’s House offers something equally meaningful: time—time to reconnect, talk, attend her field hockey games uninterrupted, and simply be mother and daughter. With her approaching college, that time feels priceless.

Jill’s House has also provided me with community. Through parent support groups and retreats, I’ve found friends who understand without explanation—people who celebrate small victories and share in difficult moments. They’ve become our people, our family.

Jill’s House has been part of our lives for six years now, and I truly can’t imagine life without it. To everyone who supports Jill’s House: please know that you are uplifting entire families—families like mine. For that, I am endlessly grateful.

The Escoto Family Story

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Told by Lisa (Mom)

Jill’s House gave us something we’d never had before:  rest and trust. For the first time, I knew [Elena] was completely safe and surrounded by people who celebrated her, who saw her light. I could finally exhale.

My daughter, Elena, can best be described as joyful. She wants to connect with everybody. She has a bright light in her, but not everyone sees that.

Elena has Angelman syndrome, which affects her mobility, communication, and sleep. In the early years, she slept only three hours a night. And so did I. Life felt like survival mode.

When Elena was six, other parents encouraged me to let her go to Jill’s House for her first overnight. I was terrified. How could I trust anyone else with her care? But they said, “She’ll love it, and you need the break.” They were right.

Jill’s House gave us something we’d never had before: rest and trust. For the first time, I knew she was completely safe and surrounded by people who celebrated her, who saw her light. I could finally exhale.

I used to call Jill’s House midway through the weekend, on Saturday afternoons, just to check in. The staff would say, “Hold on,” walk up to her, and hold up the phone. I’d hear her squealing and laughing in the background. Then they’d say, “She’s got the biggest smile on her face, and she’s having a great time.” Hearing her joy in real time meant everything to me.

Elena loved her weekends at Jill’s House in Tysons and later experienced camp weekends at Blue Ridge, where she thrived being outdoors. Blue Ridge was her happy place—smaller, quieter, and full of exciting experiences like hayrides and visits from therapy dogs. She especially loved seeing the horses (from a safe distance—they’re a little too big for her taste!) and spending time with staff who shared her excitement and energy. She felt completely at home there.

I loved the reports I’d get after each Jill’s House visit. They always began with“We love Elena because…,” followed by all the wonderful things about her. When you spend years hearing what your child needs to work on, hearing what others love about them means everything. At Jill’s House, no one told her to calm down or be different. They simply delighted in who she is.

When Elena was away on weekends, I finally had space to breathe. On Friday nights, I’d pick up takeout for me and my older daughter, Sofia, and put on a movie that we could watch, uninterrupted, in peace. For years, after Sofia went to bed, I’d end up crying until Saturday afternoon—all the emotions I’d been pushing down finally had room to surface. (Sofia would sleep in, on teenager time!). For the rest of the weekend, I would read, sleep, and enjoy one-on-one time with Sofia and with friends. Little by little, I began to feel like myself again. Jill’s House gave me that space to process and heal.

That’s what makes Jill’s House different. They don’t just meet needs; they see the whole person. Raising a child with special needs can be isolating. The world doesn’t see the unique stressors, the constant logistics, and the exhaustion. Even when people try to help, they can’t fully understand unless they’ve lived it. That’s why Jill’s House—and the community I’ve found here—means so much to me.

The Vargas-Portocarrero Family Story

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Told by Rita Vargas (Mom)

The Jill’s House adult program is a dream come true. Ricardo is welcomed, engaged one-on-on, and growing in independence.

I’m Rita, mom to Ricardo. He’s 37, endlessly social, and lights up whenever there’s a chance to talk, play a game, or ride a bike. Ricardo was born in Bolivia and diagnosed with Kabuki syndrome. Over the years he’s had many surgeries—cleft palate repair at birth, spinal surgery at five months old, eye procedures—and therapy after therapy. We moved to the U.S. when he was just two months old, and Fairfax County Public Schools supported him from the time he was a toddler.

Life gets so much harder when kids get out of the school system. As a young adult, for a while Ricardo was in a day program that was not good for him. He had to sit around stuffing envelopes and my heart just broke.

Things got better when we got into the Adults with Disabilities Day Program (ADDP) at McLean Bible Church. Ricardo has a girlfriend who he met there years ago. Although she moved to Florida two years ago, he visits her during his summer and winter breaks. They talk on the phone every night.

We learned about Jill’s House because Ricardo met Jill Solomon at ADDP, just a stone’s throw from Jill’s House! But Ricardo was already too old to participate in Jill’s House programs, which were serving kids up to age 21. When I heard last year that Jill’s House was starting an adult program, I couldn’t believe it. A few of us ADDP parents went to the open house, and the moment I walked in, I knew it was for Ricardo. I signed him up right away.

Now, Tuesday nights at Jill’s House are Ricardo’s favorite. He loves the individual attention, the chance to talk and play, and the warm welcome he receives at the curb. Staff run up to greet him by name, and he beams. Before I can even park the car, he’s calling out, “Bye, Mom!” and heading inside with a big smile. The Jill’s House adult program is a dream come true. Ricardo is welcomed, engaged one-on-on, and growing in independence.

Ricardo’s absolute favorite activity is riding bikes. At home, he would ride for hours in our cul-de-sac, but his bike is broken right now.  Jill’s House has the same bikes as his at home. He happily hops on their bikes and rides with joy for as long as he can. He also loves to play “game show host,” asking staff to be contestants while he quizzes them. Chloe, one of his favorite staff members, has become a real friend to him. She accompanied him at the “Night to Shine” gala, making the evening extra special.

When Jill’s House started offering adult camp sessions of Weekend Adventures, we were there for the debut! Ricardo had such a fun time at Blue Ridge in Middleburg. He found it thrilling to go horseback riding!

As a single mom, when Ricardo is at Jill’s House, I can meet a friend for dinner without worrying about being home by 8 p.m. to relieve a caregiver. I can breathe, laugh, and come back refreshed. That kind of respite keeps me going.

Jill’s House helps Ricardo grow in independence. For each visit, together we make a checklist for his overnight bag—toothbrush, clothes, all the basics—and he now packs for himself. I double-check, of course, but he’s learning to take responsibility.

Community has been another gift. Through Jill’s House moms’ dinners and Zoom meetups, I’ve connected with other parents who understand this journey. At a recent dinner, I met another mom and we started dreaming together about future housing options for our adult children.

To the staff at Jill’s House, I want to say: Thank you for answering God’s call. You could be doing a thousand other things, but instead you pour out love, patience, and joy for our children. When I drop Ricardo off, I feel complete peace. That is no small gift.

 

 

 

 

 

The Schutz Family

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Told by Erica Schutz (Mom)

When the world looks at Alex, many people see his challenges first. They see brokenness. But when the team at Jill’s House looks at Alex, they see a blessing.

When I look back on our family’s journey, I can hardly believe how far we’ve come. My husband Mike and I are the proud parents of two incredible boys. Our oldest, Charlie, is a sophomore at Liberty University. Our younger son, Alex, is 17 and has been visiting Jill’s House for the past nine years.

Alex has both intellectual and physical disabilities. He is medically complex and nonverbal, and he keeps us on our toes every single day. But more than anything, he is a joy and light of my life. His smile can brighten a room and his spirit is full of love.

The early years after Alex was born were some of the hardest we’ve ever faced. We were suddenly thrust into a world we hadn’t expected: feeding tubes, daily injections, countless doctor visits, and endless therapy appointments. It felt like we were living in survival mode. We were still trying to hold onto the picture we had once imagined for our family while raising a toddler whose life—and ours—had been turned upside down.

When we finally lifted our heads from the day-to-day scramble, we realized how different our world had become. We no longer fit neatly into the communities we had known. Our life didn’t look like anyone else’s around us. It was lonely. It was isolating. We loved our son deeply, but we felt adrift.

That’s when Jill’s House stepped in. When the world looks at Alex, many people see his challenges first. They see brokenness. But when the team at Jill’s House looks at Alex, they see a blessing. Where others might see limitation, Jill’s House sees purpose—a child created in the image of God with a beautiful plan for his life.

When our family wondered where we belonged, Jill’s House welcomed us with open arms. They didn’t overlook our differences or try to smooth them away. They said, because of your differences, because of your unique needs, you belong here.

That message changed everything for us. When Alex spends a weekend at Jill’s House, I can truly rest. I know he is being treated with dignity, kindness, and love. He’s not only cared for—he’s celebrated. The staff and volunteers delight in him for exactly who he is.

From the very first visit Alex’s favorite thing at Jill’s House has been the bounce house. In fact, he loves it so much that his sign for Jill’s House is “jump.”  He also loves playing basketball in the gym and coloring with the staff in the art room.

Jill’s House has also created space for Mike and me to nurture our marriage. Their retreats for parents of children with disabilities bring us together with other couples who understand our life in a way few others can. We share our stories, laugh, pray, and find renewal.

Even our older son Charlie has found a place of belonging. At family retreats, he meets siblings who “get it,” kids who understand what it’s like to have a brother or sister with complex needs. For Charlie, it’s a gift to see other families that look like ours.

Over these seventeen years of being Alex’s mom, I’ve learned that respite is more than a physical rest—though I cherish every quiet moment. True respite is a renewal of the heart, mind, and spirit. It is the deep comfort of connection, the healing power of belonging, and the peace of knowing you are accepted just as you are.  That is the life-changing gift Jill’s House gives our family.

To everyone who supports this ministry—whether through time, prayer, or financial gifts—please know you are making a difference far beyond what words can express. Because of you, families like ours can breathe, recharge, and remember that we are not alone.

Jill’s House has given us more than weekends of care. It has given us a home in the truest sense of the word—a community where our family is seen, loved, and celebrated. For that, we are endlessly thankful.

 

 

 

 

The Mickles-Bass Family

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JoJo cries when he has to leave Jill’s House. He counts how many days he’s been away and asks when he gets to go back. That’s how much it means to him. Jill’s House is the only place I trust to care for my son without me.

My name is Teresa Mickles, and my son, JoJo—well, Rodney Jolyn Bass, but we call him JoJo at home—has been going to Jill’s House for almost 10 years. He’s 16 now, and let me tell you, Jill’s House has been one of the biggest blessings in our lives.

JoJo is a one-of-a-kind young man. He’s got a big heart and an even bigger love for Super Mario. Everything in his room is Mario-themed—slippers, comforters, clocks, dishes, you name it. He even writes letters to Nintendo requesting new Mario products, and they write him back! He’s also written to President Biden and received a response. Besides, he buys stuffed animals for his friends, writes heartfelt letters, and makes everyone feel special. In short, he just loves to love.

JoJo has been fighting since day one. He was the baby I brought home after losing his twin in the womb. At the age of two, he was diagnosed with autism and epilepsy. He also has sleep apnea, a speech disorder, and a few other conditions. However, I always say that he has joy and happiness, and that’s more powerful than any diagnosis. Despite everything, he wakes up smiling and is always laughing to himself throughout the day. Everyone knows him for his smile. From the start, doctors told me what he wouldn’t be able to do, but I chose to fight for him, and he’s proved them all wrong.

JoJo and I had never been separated until he started going to Jill’s House. As a single mom, I’ve always been protective. But from the moment JoJo walked in, I saw the way the staff welcomed him like royalty. Ms. T on staff assured me that JoJo would be in good hands with staff trained to deal with JoJo’s autistic behavior and all his diagnoses.

The Jill’s House staff treat JoJo like family, saying “JoJo! We missed you!” whenever I drop him off. When I went on their single moms’ retreat, I was treated with love and care, too. I knew in my heart that if they treat parents this well, our kids are in amazing hands. We excitedly look forward to every visit, and the annual Christmas party is a highlight of JoJo’s year.

JoJo lights up whenever he knows he’s going to Jill’s House. He pre-packs his Mario swim trunks and counts down the days. The moment we walk in, he’s off! He checks who his caregiver is, and if it’s Chloe—his favorite—he’s over the moon. After a visit to Jill’s House, JoJo usually writes letters to Chloe and other staff, and they write him back! Chloe even came to his “King-Teen” birthday party and brought a framed picture of the two of us. She always goes above and beyond.

When he’s at Jill’s House, I finally get a moment to breathe. I go to a concert or comedy show, see friends, and just rest. Jill’s House even schedules JoJo’s visits around my birthday weekend every year. That’s the kind of care and consideration they give us. Meanwhile, JoJo is having a blast. He loves to swing, draw in the art room, play basketball, ride the scooter, and sing in a chapel.

So, to any parent  nervous about leaving their child with someone else: I get it, but trust me, your child will be safe, loved, and celebrated at Jill’s House. They’ve walked with us, supported us, and truly changed our lives.

JoJo cries when he has to leave Jill’s House. He counts how many days he’s been away and asks when he gets to go back. That’s how much it means to him. Jill’s House is the only place I trust to care for my son without me.

 

 

The Dickerson Family

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When we first moved to Virginia, we attended McLean Bible Church, which had begun to outline the vision for Jill’s House and raise funds for its construction. At that time, we hadn’t started a family yet, and we joyfully contributed to the mission, believing it would immensely help families in need. We never imagined that WE would become one of those families.

Now, we have three children aged 11 to 16 years old. Our middle son, Joshua, has been attending Jill’s House for five consecutive years.

Joshua was born on time, meeting all his growth milestones, and eating well. When he was six months old, we accepted a posting in Morocco with the U.S. Embassy, where we would see a traveling doctor for well-baby check-ups. However, when Joshua was about 16 months old, he began to regress in some of his skills, prompting the doctor to recommend that we return to the States for a medical evaluation.

Joshua and I flew back to the D.C. area for a month so he could undergo testing and evaluation. As we headed to his hearing assessment, I remember praying for a clear and manageable diagnosis. Fortunately, his hearing was excellent! Later, we learned that he was on the autism spectrum.

We returned to Morocco and received virtual play therapy for Joshua, which was our only support until we moved back to the States permanently when he was 2 ½ years old. During this time, he wasn’t speaking, but he made eye contact and loved being around people. We were uncertain about how the autism diagnosis would manifest in Joshua.

After moving to Fairfax County, we enrolled Joshua in Early Intervention, where he received substantial support. It was a wonderful experience! He even began to say a word or two.

With three children, including one with special needs, Jill’s House didn’t cross our minds during this busy period. A friend later recommended Jill’s House when Joshua was about seven years old, and we thought, “Oh yes! That’s right.” However, we were unsure if Joshua would be ready to be away from us.

We began the lengthy intake process, but the day after we visited Jill’s House, COVID-19 shut ev erything down. Fortunately, just a few months later, we completed the intake process and scheduled Joshua’s first stay.

Since then, Joshua has participated in the Weekend Program and Day Camps. He enjoys all his favorite activities, especially lounging on the big comfy couch in the Great Room! He prefers to be at the center of the action, aware of everyone coming and going. At home, he likes to be on the couch in the living room, while at Jill’s House, he prefers to relax on the couch in the Great Room.

As Joshua approaches puberty, we realize that we must be vigilant about his facial expressions, body

movements, and vocalizations. His body is changing, and he is becoming larger and more assertive, requiring us to be extra watchful. When Joshua is at Jill’s House, we can relax, and our home becomes quieter. Our other children can have friends over for sleepovers, allowing us to focus more on one another.

Joshua will likely never live independently, and his life has revolved around us. His time at Jill’s House is crucial for fostering his independence and flexibility, which are vital for his well-being and future. Additionally, it helps him manage anxiety, as he learns that he can be cared for by others.

By all accounts, Joshua enjoys his time at Jill’s House! He sees familiar faces, and they know him well. It’s really nice to be known! Jill’s House is a tremendous blessing for our entire family!

The Card Family

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Jill’s House has been our saving grace!!

McKenna, now 13 years old, has been enjoying the love and care of Jill’s House for seven wonderful years. The quarterly weekend visits, day camps, and school night program have become a cherished part of her life and ours. It’s a space that brings her immense joy and provides her with opportunities to engage in activities she loves, which can be hard to find for someone with her unique needs.

McKenna is non-ambulatory, non-verbal, and has sensory processing challenges, which make social settings particularly overwhelming for her. These challenges don’t just affect her; they ripple through our family life. Socializing, spending time with neighbors, or building new friendships often feels out of reach because McKenna can easily become overstimulated. This is why Jill’s House is such a blessing—not only for her, but for all of us. While McKenna is at Jill’s House, we savor the rare opportunity to connect as a family in ways that aren’t always possible. Whether it’s going out to dinner, catching up with friends, or planning a special sleepover for McKenna’s brother, the time is precious and deeply restorative.

Though McKenna is non-verbal, she’s incredibly expressive, and her excitement for Jill’s House is unmistakable. She literally screams with joy when it’s time to go. After each of her visits she loves sharing her Jill’s House report with her classmates at school. It’s a source of pride for her and a way to connect with her peers.

McKenna’s love for Jill’s House extends to the activities she enjoys most there. She adores the water, so pool days are always a highlight. She also thrives on movement, whether it’s swinging on the playground or exploring the indoor play spaces. Even at home, she finds joy in watching the Jill’s House YouTube channel and Instagram stories. Her smiles while watching those videos speak volumes about how much she treasures her time there.

Jill’s House is more than just a place; it’s a safe, nurturing, and comforting sanctuary that blesses our entire family. It’s a rare and invaluable resource that we don’t take for granted. The care and love McKenna receives there have made a profound difference in her life and ours. We are deeply grateful for Jill’s House and the impact it has had on our journey.

The Charles Family

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As told by Joy Charles

Jill’s House has been an integral part of our journey for many years. Knowing we have a place just for us is food for our souls!

When our boys were two and three years old, we received diagnoses that both had autism; our younger son, Teddy, also had an intellectual disability, and my husband was battling stage 4 prostate cancer. In those early years, between fighting for services for Teddy, fighting for my husband’s life, and fighting for my mental health, I felt like I couldn’t get on top of anything. Teddy would often elope, and we were always in a state of heightened alert. I didn’t feel like I could engage with the world in the same way other people did.

Teddy was in kindergarten when we learned about the disability waiver that would allow us to receive special services. I was exhausted and overwhelmed, but completed the necessary paperwork with the help of the elementary school social worker, who also told us about Jill’s House.

I cautiously approached Jill’s House. I didn’t know what to expect and was very nervous. We were blown away by the tour, but I worried about how they would keep Teddy physically safe inside. I often say that physicality is his superpower; he could escape from anywhere! I didn’t know how he could possibly be kept safe.

When we entered the pool area during our tour, I was 100% sure Teddy was going to be denied access. Before we could blink an eye, he jumped into the pool fully clothed and swam to the center. The only thought that kept circling in my mind was how this would work. To my surprise, Teddy wasn’t denied access to Jill’s House!

Before Teddy’s first weekend stay at Jill’s House, we went to the store so he could pick out his own suitcase. He chose a Pokémon suitcase, which he still uses today! While Teddy was excited, I remained anxious. At drop-off, the team reassured me that I could call anytime to check on him. Of course, I did what any parent would do, and I called in the middle of the night, asking them to check in on him to make sure he was still in his room—and breathing. They lovingly addressed my concerns, and over time, I have grown more confident that he is safe at Jill’s House. I have learned to trust them and let go, and now we all look forward to our weekends.

Jill’s House has been an integral part of our journey for many years. Teddy feels welcomed and loved, and I have formed beautiful friendships with other moms. For parents of children with special needs, we often pass each other like planets in orbit, and rarely have a chance to connect. However, Jill’s House has worked hard to foster a sense of community among us. Knowing we have a place just for us is food for our souls!

I derive immense joy from Teddy and his zest for life! Whether he is feeding the wildlife in our backyard or joyfully watching the animals play, he is a happy kid. His heart is pure, and I am so grateful to be his mom.

We lost their father, and sadly, much of my boys’ lives have been overshadowed by cancer. I now honor my husband’s legacy by advocating for my boys and other children, believing that our world is a better place because of our kids!

The Adams-Nagel Family

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As told by Jan Adams

“Never will I leave you; never will I forsake you.” Hebrews 13:5

Nico was born in Guatemala and entered our family through adoption when he was 6 months old. We were excited to welcome a baby into the world, but when we couldn’t conceive a child naturally or through multiple fertility treatments, we knew that adoption would be how our family would grow. Our process of adoption from Guatemala was so uncommon and totally orchestrated by God. Our names were added to a list, and we were emailed pictures and details of children seeking a forever home. For several months we received emails from the listserv, then in March 2007, we received an email with a picture of the sweetest little one-month-old baby boy. We knew instantaneously that we wanted to meet him and bring him home! We arranged to visit Guatemala and meet him in July 2007, and he came home with us on a Medical Emergency VISA in August 2007.

Nico was very ill. He was medically fragile and needed urgent care which we located in the DC area before we brought him home. He was born with severe pulmonic stenosis and had his first surgery within days of being home. He was diagnosed with failure to thrive and had plagiocephaly which required 4 rounds of Doc Band treatments. He received OT to help with the formation and use of his mouth as well as PT due to his hypotonia.  He is on the Autism spectrum.  He has hearing loss and wears bilateral hearing aids, and significant vision loss so he wears corrective lenses. Nico has Noonan Syndrome and femoral anteversion as well.

I had to leave my career in telecommunications in 2007 because I was taking Nico to 7-9 appointments a week. I fought, and still fight for Nico to receive the best care, services, and opportunities to thrive.

Before we adopted Nico, we used to volunteer with Access Ministries (a ministry for children with special needs) at McLean Bible Church. In fact, as a volunteer at MBC, I cared for Lon and Brenda Solomon’s daughter, Jill, whom Jill’s House is named after!  We remember the years of preliminary work that were so instrumental in building Jill’s House. God was working in and through our lives in preparation for Nico, long before he was even born!

When Nico turned 6 years old, we were excited to register him at Jill’s House. With no family to help in the area and having a special needs child that made staying with a typical sitter or overnight with a friend, a non-option, Jill’s House was THE OPTION.

We met and trusted the staff so much, and I knew they would love and care for him as I did. Jill’s House was going to provide Nico with his very own experiences and opportunities. Eleven years later, we have wonderful caregivers who have been a part of Nico’s life and will never be forgotten.

Between scheduling doctors’ appointments, communications with Nico’s education team (teachers, therapists, specialists), maintaining the care schedule at home, and managing my full-time work, it is hard to relax. I am also a single mom, so there’s hardly ever a moment I am fully relaxed. But the school nights when Nico is at Jill’s House are a huge blessing! It is nice to have a break during the week when I don’t have to think about meals or the schedule, I can unwind, or work a few extra hours if I need to. Those nights are such a gift. But truly, the gift is for Nico. Where else would a kid have the opportunity to swim in an indoor pool before dinner on a school night?!

Nico thrives with a schedule and when he knows what to expect. When the Jill’s House bus arrives at school, he is excited to climb on and greet his friends, and he anticipates all the fun he’ll have when they arrive at Jill’s House. At Jill’s House, Nico gets to build relationships with kids and have fun with the staff and volunteers. Jill’s House staff and volunteers treat him like a typical child. They treat him with honor and respect, and the special child he is!

Our life is very complicated! So overnight respite is truly what I need. Jill’s House helps me to relax. There are very few places where Nico feels comfortable, safe, and loved unconditionally. Jill’s House is one that truly gives me the freedom to pause, breathe, and relax.