The Mickles-Bass Family

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JoJo cries when he has to leave Jill’s House. He counts how many days he’s been away and asks when he gets to go back. That’s how much it means to him. Jill’s House is the only place I trust to care for my son without me.

My name is Teresa Mickles, and my son, JoJo—well, Rodney Jolyn Bass, but we call him JoJo at home—has been going to Jill’s House for almost 10 years. He’s 16 now, and let me tell you, Jill’s House has been one of the biggest blessings in our lives.

JoJo is a one-of-a-kind young man. He’s got a big heart and an even bigger love for Super Mario. Everything in his room is Mario-themed—slippers, comforters, clocks, dishes, you name it. He even writes letters to Nintendo requesting new Mario products, and they write him back! He’s also written to President Biden and received a response. Besides, he buys stuffed animals for his friends, writes heartfelt letters, and makes everyone feel special. In short, he just loves to love.

JoJo has been fighting since day one. He was the baby I brought home after losing his twin in the womb. At the age of two, he was diagnosed with autism and epilepsy. He also has sleep apnea, a speech disorder, and a few other conditions. However, I always say that he has joy and happiness, and that’s more powerful than any diagnosis. Despite everything, he wakes up smiling and is always laughing to himself throughout the day. Everyone knows him for his smile. From the start, doctors told me what he wouldn’t be able to do, but I chose to fight for him, and he’s proved them all wrong.

JoJo and I had never been separated until he started going to Jill’s House. As a single mom, I’ve always been protective. But from the moment JoJo walked in, I saw the way the staff welcomed him like royalty. Ms. T on staff assured me that JoJo would be in good hands with staff trained to deal with JoJo’s autistic behavior and all his diagnoses.

The Jill’s House staff treat JoJo like family, saying “JoJo! We missed you!” whenever I drop him off. When I went on their single moms’ retreat, I was treated with love and care, too. I knew in my heart that if they treat parents this well, our kids are in amazing hands. We excitedly look forward to every visit, and the annual Christmas party is a highlight of JoJo’s year.

JoJo lights up whenever he knows he’s going to Jill’s House. He pre-packs his Mario swim trunks and counts down the days. The moment we walk in, he’s off! He checks who his caregiver is, and if it’s Chloe—his favorite—he’s over the moon. After a visit to Jill’s House, JoJo usually writes letters to Chloe and other staff, and they write him back! Chloe even came to his “King-Teen” birthday party and brought a framed picture of the two of us. She always goes above and beyond.

When he’s at Jill’s House, I finally get a moment to breathe. I go to a concert or comedy show, see friends, and just rest. Jill’s House even schedules JoJo’s visits around my birthday weekend every year. That’s the kind of care and consideration they give us. Meanwhile, JoJo is having a blast. He loves to swing, draw in the art room, play basketball, ride the scooter, and sing in a chapel.

So, to any parent  nervous about leaving their child with someone else: I get it, but trust me, your child will be safe, loved, and celebrated at Jill’s House. They’ve walked with us, supported us, and truly changed our lives.

JoJo cries when he has to leave Jill’s House. He counts how many days he’s been away and asks when he gets to go back. That’s how much it means to him. Jill’s House is the only place I trust to care for my son without me.

 

 

The Fisher Family

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When Kaelen is at Jill’s House, I get a rare weekend to rest as a single dad. I usually stay nearby, go hiking, and enjoy some quiet. Then we talk the whole way home about everything he did.

I’m the proud dad of Kaelen. It’s just the two of us living together in South Jersey, and our bond is something truly special. Kaelen is full of life—always happy, kind, and energetic. We understand each other. He’s not just my son—he’s my teammate, travel buddy, and the motivation behind most of what I do.

We’ve been through our share of challenges, but we’ve also been really fortunate. That sense of gratitude drives us to give back. For many years, we’ve made it a mission to serve others—putting together care packages during the COVID-19 pandemic, picking up trash on Earth Day, handing out gloves in the winter, and making sandwiches for the homeless. Kaelen has been right beside me through all of it. We’ve even made it our goal to do charitable acts in all 50 states. So far, we’ve hit about 12 or 13.

Kaelen and I love to travel. Last year, we went to Japan to visit Super Nintendo World in Osaka. Besides having an awesome experience at the theme park, he loved the strawberry buffet at the hotel! In our travels, we like to mix fun with service, making memories everywhere we go.

One of the biggest blessings we’ve encountered is Jill’s House. We heard about it through a friend and decided to give it a try, even though it’s over two hours away. From that very first visit, Kaelen loved it. He especially enjoys the pool, gym, and making new friends with his “buddies.”

Jill’s House gives me peace of mind. Dropping him off there the first time was a little nerve-wracking, but I trusted the people who recommended it and was quickly reassured. Now, when Kaelen is at Jill’s House, I get a rare weekend to rest as a single dad. I usually stay nearby, go hiking, and enjoy some quiet. When it’s time for him to leave, we talk the whole way back home about everything he did. He always has stories about the buddy he was paired up with. We’re also both big foodies, and he raves about the meals at Jill’s House. It’s become part of our rhythm, something we both look forward to.

To any parent considering Jill’s House, I say it’s absolutely worth it. There’s nothing like knowing your child is safe, happy, and celebrated while you get the chance to recharge. The team at Jill’s House goes above and beyond, and they truly care. It’s not just respite; it’s a community—a lifeline. For us, it’s been the best respite program we’ve ever experienced.

Kaelen calls me “bald and beautiful,” and I’ll take it. He says I’m caring, and I’d say the same about him. We’re the Dynamic Duo. We do our best, and Jill’s House helps us keep going.

 

The Ditcharo Family

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Jill’s House gives Eden the camp experience she otherwise wouldn’t have. It gives us rest. And it gives our other kids a chance to do things they couldn’t do otherwise. It’s a gift all the way around.

We’re the Ditcharo family, a party of five living just outside Nashville, Tennessee. Life with three kids is beautifully full—and uniquely shaped by our middle daughter, Eden, who is 15 years old. She was born with a rare genetic disorder that affects her global development. She looks like a typical teenager, but she can only communicate in short phrases and still can’t write her name. That said, she can zipline, climb monkey bars, and swim, and she surprises us all the time with what she knows.

We first heard about Jill’s House when it was just a Virginia-based program. A friend from church mentioned it to us, and once we heard that the Jill’s House Weekend Adventures program was coming to Tennessee, we jumped at the chance to get involved. We were excited about the idea of a Christian respite program that offered weekend camps—something Eden could enjoy, and something that would give us the margin to breathe as a family. Eden’s siblings go to camp, but she hadn’t had the chance to go. Jill’s House was her opportunity!

From her very first visit, Eden fell in love with Jill’s House. She talks about it constantly—especially the hayrides, music, zipline, talent shows, and dance parties (Taylor Swift songs are her favorite!). She’s never been one to fear new places or people; so the moment we mention camp, she gets her backpack on and is ready to go. When we pick her up, she’s always tired and happy. And before we even get home, she’s already asking, “When can I go back?”

Jill’s House doesn’t just bless Eden—it blesses our whole family. Having a child with special needs is like always parenting a toddler. You’re always on, always attentive. But when Eden is at camp, we can focus on our other two children, Dylan and Charlotte, or even just spend time as a couple. One weekend while Eden was away, we enjoyed an overnight getaway in Nashville as a couple—dinner, a Predators game, and a night downtown. Another time, we took the other kids to Dollywood. Eden’s not a rollercoaster fan, so it was a chance for the four of us to have an adventure that she wouldn’t enjoy. These moments are rare and so important. While Eden is having a ball, we can also have a great time. Everyone is happy!

As parents of a child with an intellectual disability, we’ve learned how hard it is to find trusted respite care. Before sending Eden to Jill’s House, we had questions about volunteer training and camper safety. But from the very first intake call, we felt confident in the care she would receive. The team goes above and beyond, even sending us detailed summaries after each weekend—helping us understand what Eden did and giving us conversation starters to engage her when she comes home.

It also matters deeply to us that Jill’s House is a Christian organization. Knowing Eden is being loved and cared for by people who share our values makes all the difference. We don’t take that lightly.

If you’re a parent of a child with special needs and you’re on the fence about Jill’s House, we can’t recommend it enough. Respite is not a luxury—it’s a necessity. Our kids need it, and we, as parents, need it. You don’t realize how much it can mean to you until you experience it for yourself.

Jill’s House gives Eden the camp experience she otherwise wouldn’t have. It gives us rest. And it gives our other kids a chance to do things they couldn’t do otherwise. It’s a gift all the way around.

If we could dream big, we’d love to see weeklong summer day camps offered here in Tennessee, like they do in Virginia. Now that Eden’s aged out of many local day camps, our options are limited. She loves camp so much—we just want more opportunities for her and kids like her.

Until then, we’ll keep celebrating every Jill’s House weekend. Because for us, it’s more than camp. It’s joy. It’s respite. It’s love.

The Hart Family

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Told by Cindy Hart (Mom)

We were so thrilled when we heard about Jill’s House. Suddenly we had this community of people who understood our boys and connected with us as a family. The staff understood their needs. Nothing about our boys was new or different to them.

When Peter was born, he was a joyful surprise to our already large family. As we welcomed our seventh biological child, he also entered us into the new world of raising a child with Down syndrome. Peter also inspired us on an unexpected path into the world of special needs adoption. That’s how we welcomed his younger brother Stephen into our family.

As we started the adoption process, our goal was to have another boy a little younger than Peter and also with Down syndrome. When our adoption agency showed us a picture of Stephen, 18 months younger than Peter, we immediately felt a connection to this little boy in China.

We brought Stephen home at the age of three and a half years. As we adjusted to our new family dynamics, I began to suspect that Stephen might also have autism. It wasn’t just the language barrier. It became clear that Stephen processed the world differently. He started using a communication device, and we navigated our way through various therapies.

Even though we had all these kids and had been in the same neighborhood for a long time, we found ourselves in a whole new world. We had the support of our church and older children, but we weren’t connected to the special needs community. We were so thrilled when we heard about Jill’s House. Suddenly we had this community of people who understood our boys and connected with us as a family. The staff understood their needs. Nothing about our boys was new or different to them.

We first sent Peter, and Stephen joined soon after. Early on, they stayed in the same room together, but Stephen kept Peter up at night. So, the staff thoughtfully gave them separate rooms. That’s one of the things I love the most about Jill’s House—they understand the kids so well and know what will work the best for them.

Peter and Stephen haven’t attended the same school since preschool, due to their different needs. Their time at Jill’s House Blue Ridge camp has been a rare opportunity to share experiences. One of my favorite moments was when Stephen saw Peter do the high swing and decided to try it himself. If his big brother does something, Stephen wants to do it too! That was a thrill for all of us.

Stephen gets so excited about his upcoming Jill’s House visits. About a month away, he will start talking about it on his device. While Peter and Stephen are busy having the time of their lives, my husband and I spend our weekends reconnecting as a couple, catching up with friends, or visiting our older kids. One weekend, we even used the time to drive down to Charlottesville for an event our daughter was involved in, stayed overnight, and still had the time to do things at home before pick-up.

My husband and I loved the marriage retreat. It was remarkably wonderful to meet other couples who truly understood our journey. Being around other couples that really prioritized their marriage—and also have this unique experience of raising children with special needs—was really, really wonderful. My husband is now a regular at the Dad’s Saturday morning brunches, and I’ve joined the Thursday evening gatherings. As we connect with the community of Jill’s House parents, we gain tools and friendships. I only wish we had gotten involved sooner.

We are grateful for so many things about Jill’s House. But thank you for seeing the beauty of our children. That is what is most touching.

The Haynes Family

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Told by Sean Haynes (Dad)

We are so grateful for everyone at Jill’s House Rocky Top Camp. You can see their hearts and how much they love our kids. Everything about Jill’s House is just incredible.

Beck was around 18 months old when we first noticed a lack of eye contact, and he was only able to communicate minimally. By the time he was 3, his daycare recommended that we pursue testing. After he was evaluated, we enrolled him in early intervention services through an ABA school, where he received support for two years before starting elementary school. This early intervention set him up for success.

Beck has been attending Jill’s House for almost four years. Before that, he had never been enrolled in an overnight program. He attended a day program through our church, but it didn’t offer overnight stays. We heard from other parents in our community group that Jill’s House could be a great option for Beck, so we decided to look into it.

It’s funny—when we were asked to consider sharing our Family Story, I immediately remembered that first time we dropped off Beck like it had just happened!

I remember driving away feeling so overwhelmed and crying. My wife was working that night so I dropped off Beck alone. I don’t really know if I was crying because I was so nervous or grateful. But I remember all those emotions hitting all at once, because Beck had never been away from us!

And, if I’m honest, I never believed for a moment that he would sleep away from us. He struggled with sleep for a long period of time, and I just kept thinking, “There is no way this is going to work!” I had all the doubts in my mind!

But Beck is very trusting of us. He and I hike a lot together, and I remember one time we got lost on the trail. I kept saying, “Just one more minute, we’re almost there.” Meanwhile, he was just so trusting of me. He kept following me.

So when it was time for him to go to Jill’s House for the weekend, he was so trusting of us. He was ready to go and trusted that this was right for him. That weekend was just awesome!

Now, when Beck goes to Jill’s House we look forward to sleep, waking in the morning and lingering while we enjoy coffee and talking to one another. We usually don’t plan to do a lot over those weekends except time together.

Beck’s favorite thing about camp is the camp counselors. He has formed a special bond with some of them. While he doesn’t participate in many activities—he’s not competitive and worries about his balance—he’s not interested in the high-energy weekends, and he doesn’t like crafts. But he loves spending time with the counselors. The social interactions Beck has while he’s at camp are so good!

We are so grateful for everyone at Jill’s House Rocky Top Camp. You can see their hearts and how much they love our kids. When we arrive at camp they are waiting for Beck and openly welcome him. Allowing Beck the space for him to build relationships is incredible. Knowing that Beck is safe, incredible! Everything about Jill’s House is just incredible. But the respite is invaluable!

The Dickerson Family

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When we first moved to Virginia, we attended McLean Bible Church, which had begun to outline the vision for Jill’s House and raise funds for its construction. At that time, we hadn’t started a family yet, and we joyfully contributed to the mission, believing it would immensely help families in need. We never imagined that WE would become one of those families.

Now, we have three children aged 11 to 16 years old. Our middle son, Joshua, has been attending Jill’s House for five consecutive years.

Joshua was born on time, meeting all his growth milestones, and eating well. When he was six months old, we accepted a posting in Morocco with the U.S. Embassy, where we would see a traveling doctor for well-baby check-ups. However, when Joshua was about 16 months old, he began to regress in some of his skills, prompting the doctor to recommend that we return to the States for a medical evaluation.

Joshua and I flew back to the D.C. area for a month so he could undergo testing and evaluation. As we headed to his hearing assessment, I remember praying for a clear and manageable diagnosis. Fortunately, his hearing was excellent! Later, we learned that he was on the autism spectrum.

We returned to Morocco and received virtual play therapy for Joshua, which was our only support until we moved back to the States permanently when he was 2 ½ years old. During this time, he wasn’t speaking, but he made eye contact and loved being around people. We were uncertain about how the autism diagnosis would manifest in Joshua.

After moving to Fairfax County, we enrolled Joshua in Early Intervention, where he received substantial support. It was a wonderful experience! He even began to say a word or two.

With three children, including one with special needs, Jill’s House didn’t cross our minds during this busy period. A friend later recommended Jill’s House when Joshua was about seven years old, and we thought, “Oh yes! That’s right.” However, we were unsure if Joshua would be ready to be away from us.

We began the lengthy intake process, but the day after we visited Jill’s House, COVID-19 shut ev erything down. Fortunately, just a few months later, we completed the intake process and scheduled Joshua’s first stay.

Since then, Joshua has participated in the Weekend Program and Day Camps. He enjoys all his favorite activities, especially lounging on the big comfy couch in the Great Room! He prefers to be at the center of the action, aware of everyone coming and going. At home, he likes to be on the couch in the living room, while at Jill’s House, he prefers to relax on the couch in the Great Room.

As Joshua approaches puberty, we realize that we must be vigilant about his facial expressions, body

movements, and vocalizations. His body is changing, and he is becoming larger and more assertive, requiring us to be extra watchful. When Joshua is at Jill’s House, we can relax, and our home becomes quieter. Our other children can have friends over for sleepovers, allowing us to focus more on one another.

Joshua will likely never live independently, and his life has revolved around us. His time at Jill’s House is crucial for fostering his independence and flexibility, which are vital for his well-being and future. Additionally, it helps him manage anxiety, as he learns that he can be cared for by others.

By all accounts, Joshua enjoys his time at Jill’s House! He sees familiar faces, and they know him well. It’s really nice to be known! Jill’s House is a tremendous blessing for our entire family!

The Card Family

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Jill’s House has been our saving grace!!

McKenna, now 13 years old, has been enjoying the love and care of Jill’s House for seven wonderful years. The quarterly weekend visits, day camps, and school night program have become a cherished part of her life and ours. It’s a space that brings her immense joy and provides her with opportunities to engage in activities she loves, which can be hard to find for someone with her unique needs.

McKenna is non-ambulatory, non-verbal, and has sensory processing challenges, which make social settings particularly overwhelming for her. These challenges don’t just affect her; they ripple through our family life. Socializing, spending time with neighbors, or building new friendships often feels out of reach because McKenna can easily become overstimulated. This is why Jill’s House is such a blessing—not only for her, but for all of us. While McKenna is at Jill’s House, we savor the rare opportunity to connect as a family in ways that aren’t always possible. Whether it’s going out to dinner, catching up with friends, or planning a special sleepover for McKenna’s brother, the time is precious and deeply restorative.

Though McKenna is non-verbal, she’s incredibly expressive, and her excitement for Jill’s House is unmistakable. She literally screams with joy when it’s time to go. After each of her visits she loves sharing her Jill’s House report with her classmates at school. It’s a source of pride for her and a way to connect with her peers.

McKenna’s love for Jill’s House extends to the activities she enjoys most there. She adores the water, so pool days are always a highlight. She also thrives on movement, whether it’s swinging on the playground or exploring the indoor play spaces. Even at home, she finds joy in watching the Jill’s House YouTube channel and Instagram stories. Her smiles while watching those videos speak volumes about how much she treasures her time there.

Jill’s House is more than just a place; it’s a safe, nurturing, and comforting sanctuary that blesses our entire family. It’s a rare and invaluable resource that we don’t take for granted. The care and love McKenna receives there have made a profound difference in her life and ours. We are deeply grateful for Jill’s House and the impact it has had on our journey.

The Charles Family

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As told by Joy Charles

Jill’s House has been an integral part of our journey for many years. Knowing we have a place just for us is food for our souls!

When our boys were two and three years old, we received diagnoses that both had autism; our younger son, Teddy, also had an intellectual disability, and my husband was battling stage 4 prostate cancer. In those early years, between fighting for services for Teddy, fighting for my husband’s life, and fighting for my mental health, I felt like I couldn’t get on top of anything. Teddy would often elope, and we were always in a state of heightened alert. I didn’t feel like I could engage with the world in the same way other people did.

Teddy was in kindergarten when we learned about the disability waiver that would allow us to receive special services. I was exhausted and overwhelmed, but completed the necessary paperwork with the help of the elementary school social worker, who also told us about Jill’s House.

I cautiously approached Jill’s House. I didn’t know what to expect and was very nervous. We were blown away by the tour, but I worried about how they would keep Teddy physically safe inside. I often say that physicality is his superpower; he could escape from anywhere! I didn’t know how he could possibly be kept safe.

When we entered the pool area during our tour, I was 100% sure Teddy was going to be denied access. Before we could blink an eye, he jumped into the pool fully clothed and swam to the center. The only thought that kept circling in my mind was how this would work. To my surprise, Teddy wasn’t denied access to Jill’s House!

Before Teddy’s first weekend stay at Jill’s House, we went to the store so he could pick out his own suitcase. He chose a Pokémon suitcase, which he still uses today! While Teddy was excited, I remained anxious. At drop-off, the team reassured me that I could call anytime to check on him. Of course, I did what any parent would do, and I called in the middle of the night, asking them to check in on him to make sure he was still in his room—and breathing. They lovingly addressed my concerns, and over time, I have grown more confident that he is safe at Jill’s House. I have learned to trust them and let go, and now we all look forward to our weekends.

Jill’s House has been an integral part of our journey for many years. Teddy feels welcomed and loved, and I have formed beautiful friendships with other moms. For parents of children with special needs, we often pass each other like planets in orbit, and rarely have a chance to connect. However, Jill’s House has worked hard to foster a sense of community among us. Knowing we have a place just for us is food for our souls!

I derive immense joy from Teddy and his zest for life! Whether he is feeding the wildlife in our backyard or joyfully watching the animals play, he is a happy kid. His heart is pure, and I am so grateful to be his mom.

We lost their father, and sadly, much of my boys’ lives have been overshadowed by cancer. I now honor my husband’s legacy by advocating for my boys and other children, believing that our world is a better place because of our kids!

The Zwiebel Family

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As told by Andrew & Kate Zwiebel

Jill’s House Weekend Adventure Camp is a place where Jack can be Jack, and we are so grateful that he has a place where he is welcomed and loved!

Jack…is…awesome! He is such a good-humored, curious, and good-natured kid. He makes us laugh a lot, like when he randomly puts on his blow-up dinosaur costume! He will often play jokes on us too, like playing hide-n-seek in construction equipment while we’re on neighborhood walks.

We were married in Lake Tahoe, Nevada, while living in San Francisco, and shortly after our oldest was born, we moved to Seattle, Washington. Although the move to Seattle meant leaving family and starting a new adventure, we felt God’s presence and have continued to feel His presence throughout our family’s journey.

When I was pregnant with Jack, I remember thinking there was something different. When Jack was born, he was unable to pass the infant hearing test while in the hospital. He also had feeding and nervous system issues. We knew that early intervention was very important for Jack, so by the time he was 4 months old, he was undergoing PT, OT, and speech therapy. He also had strabismus and underwent two surgeries to correct his vision. We were hopeful that these interventions would correct his balance and motor issues, but he was still unable to hit some of his milestones.

After a few years of genetic testing and no findings, we were introduced to a new genetic test that ultimately provided us with the answers we had been searching for. Upon receiving the test results, we learned that Jack had a change on the FOXP1 gene. The way it was described to us was that this change is equivalent to having a single misspelled word in a whole set of encyclopedias. We were also told that, at that time, Jack was the only kid on record with this genetic abnormality. We were shocked! Although there was not a lot known about the FOXP1 gene, we were told that the only physician in the world studying it was located near us, at Seattle Children’s Hospital!! Talk about God’s provision for our family.

We were so encouraged and relieved to finally have some answers! We are both athletes, so when we received Jack’s diagnosis, we kept saying he was going to “Varsity FOXP1.”  Soon after, we became involved with The University of Washington’s Haring Center for Inclusive Education and early childhood intervention for children with and without disabilities— ultimately, a community of like-minded families and teachers we have grown to love. This is the community that led us to Jill’s House.

Jill’s House has allowed us to further explore the extension of a community we were already a part of, while offering safe independence for Jack through overnight camp experiences. We were pleased to know that Jack would probably attend camp with friends that he had already made through our involvement with Haring Center, but also be able to make new friends. Additionally, the religious core and mission of Jill’s House were also very important to us.

Jack has been consistently going to camp for 3 years. He loves hanging out with Jill’s House staff for the weekend, and he talks about being able to stay in his own room! At the end of a weekend at camp, he comes home tired, which means he’s also engaging in all the activities!

There are so many dimensions to camp! From archery and horseback riding to paintball and all kinds of games, there are so many great activities for the kids that are, quite frankly, hard to replicate at home. Camp provides Jack with a ton of experiences that help build his confidence and his skills—even an opportunity to show off his blow-up dinosaur costume in the camp talent show!

The first time Jack went to camp, we didn’t know what to expect or how to prepare for our weekend without him. Over time, we have realized how valuable and important respite really is, to spend time with our other children and with each other. We all look forward to those weekends now!

There have been so many God-moments throughout our journey. Jill’s House Weekend Adventure Camp is an important part of our journey and a place where Jack truly belongs.

The Adams-Nagel Family

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As told by Jan Adams

“Never will I leave you; never will I forsake you.” Hebrews 13:5

Nico was born in Guatemala and entered our family through adoption when he was 6 months old. We were excited to welcome a baby into the world, but when we couldn’t conceive a child naturally or through multiple fertility treatments, we knew that adoption would be how our family would grow. Our process of adoption from Guatemala was so uncommon and totally orchestrated by God. Our names were added to a list, and we were emailed pictures and details of children seeking a forever home. For several months we received emails from the listserv, then in March 2007, we received an email with a picture of the sweetest little one-month-old baby boy. We knew instantaneously that we wanted to meet him and bring him home! We arranged to visit Guatemala and meet him in July 2007, and he came home with us on a Medical Emergency VISA in August 2007.

Nico was very ill. He was medically fragile and needed urgent care which we located in the DC area before we brought him home. He was born with severe pulmonic stenosis and had his first surgery within days of being home. He was diagnosed with failure to thrive and had plagiocephaly which required 4 rounds of Doc Band treatments. He received OT to help with the formation and use of his mouth as well as PT due to his hypotonia.  He is on the Autism spectrum.  He has hearing loss and wears bilateral hearing aids, and significant vision loss so he wears corrective lenses. Nico has Noonan Syndrome and femoral anteversion as well.

I had to leave my career in telecommunications in 2007 because I was taking Nico to 7-9 appointments a week. I fought, and still fight for Nico to receive the best care, services, and opportunities to thrive.

Before we adopted Nico, we used to volunteer with Access Ministries (a ministry for children with special needs) at McLean Bible Church. In fact, as a volunteer at MBC, I cared for Lon and Brenda Solomon’s daughter, Jill, whom Jill’s House is named after!  We remember the years of preliminary work that were so instrumental in building Jill’s House. God was working in and through our lives in preparation for Nico, long before he was even born!

When Nico turned 6 years old, we were excited to register him at Jill’s House. With no family to help in the area and having a special needs child that made staying with a typical sitter or overnight with a friend, a non-option, Jill’s House was THE OPTION.

We met and trusted the staff so much, and I knew they would love and care for him as I did. Jill’s House was going to provide Nico with his very own experiences and opportunities. Eleven years later, we have wonderful caregivers who have been a part of Nico’s life and will never be forgotten.

Between scheduling doctors’ appointments, communications with Nico’s education team (teachers, therapists, specialists), maintaining the care schedule at home, and managing my full-time work, it is hard to relax. I am also a single mom, so there’s hardly ever a moment I am fully relaxed. But the school nights when Nico is at Jill’s House are a huge blessing! It is nice to have a break during the week when I don’t have to think about meals or the schedule, I can unwind, or work a few extra hours if I need to. Those nights are such a gift. But truly, the gift is for Nico. Where else would a kid have the opportunity to swim in an indoor pool before dinner on a school night?!

Nico thrives with a schedule and when he knows what to expect. When the Jill’s House bus arrives at school, he is excited to climb on and greet his friends, and he anticipates all the fun he’ll have when they arrive at Jill’s House. At Jill’s House, Nico gets to build relationships with kids and have fun with the staff and volunteers. Jill’s House staff and volunteers treat him like a typical child. They treat him with honor and respect, and the special child he is!

Our life is very complicated! So overnight respite is truly what I need. Jill’s House helps me to relax. There are very few places where Nico feels comfortable, safe, and loved unconditionally. Jill’s House is one that truly gives me the freedom to pause, breathe, and relax.