The Schaupner Family
Told by Lindsey & Daniel Schaupner
Having a child with special needs was not something for which we had prepared. When Alex was born and the doctor told us she had Down syndrome, we didn’t know what to expect. It was a scary time! Being a family with a special needs child. Well, that was for other families. But that quickly became our family, too!
After Alex was born, our doctor gave us resources for our family. We were able to access support almost right away and enroll her in early intervention services. My OB suggested that I reach out to Jill’s House for support as Alex grows older, which was the first time we had heard about Jill’s House.
When Alex was around 18 months old, she contracted RSV and had to be hospitalized for 10 days. She was in the RSV unit of the ICU, where there were several other children with Down syndrome. RSV greatly affects kids with Down syndrome, and we learned that we could no longer enroll her in daycare because she kept getting sick so often. The hospital staff provided our family with additional resources, and that’s when we heard about Jill’s House again.
Since we were no longer able to enroll Alex in daycare, we had au pairs live with us, which allowed our whole family, and especially Alex, to build strong relationships. Although she was not enrolled in daycare to learn social skills in that setting, she thrived at home with au pairs who truly embraced her.
We became close with one au pair and later traveled, as a family, to Germany so we could visit her. We do a lot of things as a family, and our trip to Germany was special. Alex doesn’t just go along for the ride. In many cases, she IS the ride! While in Germany, she was more enthralled with castles and food than with history. We all enjoyed that trip so much that we were able to cater our trip to meet the interests of Alex — German food and cool castles!
When Alex turned five years old, we began the process of enrolling her at Jill’s House. The intake process took some time, but we wanted to be sure she was ready by the time she was the right age to go. We had family friends whose children had been going to Jill’s House and loved it. We knew Alex would enjoy it as well, and we couldn’t wait for her first stay! Alex is now 10 years old and loves staying at Jill’s House. She can be herself, enjoy time with her peers, and get a break from us! We truly appreciate the break, but Alex also receives respite when she is at Jill’s House. Jill’s House is her thing, her domain, and a unique experience for her!
Alex currently spends about three-fourths of her school day in a typically developing classroom, which amazes us! We know that many years ago, kids like Alex would not have been afforded these types of opportunities. The fact that she can have relationships with typically-abled kids is such a blessing. When we watch Alex interact with her classmates, we see that they genuinely enjoy her company. They may not completely understand Alex, and Alex may not completely understand them, but they know how their friendship makes each other feel. We cherish these moments when she interacts with friends at school, in our neighborhood, and at Jill’s House.
After school, Alex often meets a friend, and every time they see each other, Alex says “I know that girl from Jill’s House!”. The connections and friendships established through Jill’s House have made such an impact on all of our lives!

According to the form that comes home with Alex after her stay at Jill’s House, her favorite activities are swinging on the playground swings and swimming in the indoor pool. However, she is beginning to understand how to participate in a conversation. When we asked her what she enjoyed during her stay at Jill’s House, she immediately shared the weekend menu. She loves the chicken nuggets and fries!
Alex is a joy! We are grateful that Jill’s House recognizes how special Alex is, as much as we do. We are incredibly grateful for Jill’s House, not just for our family but for other families like ours as well!
Thank you for making stories like Alex’s possible.

Told by Coleen R. San Nicolas-Perez







Told by Laura Edelbrock
The two disciples were talking to each other, despondent, when they were met by a stranger. The stranger asked them, “So, what are you talking about?” They simply responded, “We had hoped for something different.” I had to stop reading. That was us! We had hoped for something very different with our pregnancy and with our family. But then as I continued to read the story, I was reminded that the stranger on the road was the risen Christ. Jesus had come for the brokenhearted. He had come for us! My heart cried out, and I started weeping. I looked down at the Bible, my vision so blurry that I couldn’t even make out the heading of the section I had just read—“On the Road to Emmaus.” Through my tears, I saw the word “Emmaus” split into “Emma” and “us.” God had given us her name, and I knew in that moment that we were exactly where we were supposed to be.
We cautiously moved forward with our decision. Our intake meetings were successful, but we were unsure how Emma would respond to staying overnight in a new place, away from us. We worked with our intake team to create a “social story” of Jill’s House on her iPad, uploading pictures and videos of the different rooms at Jill’s House and then inserting her own picture into those rooms. The story helped us introduce her to Jill’s House and all the activities she would participate in while staying there.
The blessing of Jill’s House goes far beyond Emma’s overnight stays—they continue in the form of family retreats, Bible studies, women’s retreats, and marriage retreats. Now that Emma is 23 years old and out of school, we have established relationships with other parents who are in the same situation as we are. We encourage one another and share resources.















“Before moving to Virginia, we lived in Oklahoma, which is where Charleigh was born, New York, and Texas. Charleigh was much younger when we received the first diagnosis of Severe ASD.”
“Shortly after arriving in Virginia, Charleigh’s developmental pediatrician asked if we had heard about Jill’s House, which of course we hadn’t. Hearing about Jill’s House was a complete blessing!! We were so focused on providing the best care for Charleigh, that the idea of respite had never entered our minds.

Meet Margot and Family

“Margot has a great friend group of kids who have special needs and some who do not. Margot would say that she and her friend group are ‘Really cool!’ . They do typical teenage things like go to the movie theater, go to McDonald’s, or hang out at each other’s home. Though she has great time with her friends and her family, we also know that she needs something special and just for her. Margot’s special place is Jill’s House Windy City Camp!”
“Now that Margot has been going to camp for several years, she has developed some favorite things about camp. For starters, Margot considers herself a foodie and says the food is really good! She also loves having a camp buddy. But hands down, her most favorite thing about camp is the Talent Show. Margot will carefully prepare for the Talent Show. She plans what she will do and what props she will bring. She will sometimes dance or sing along to a favorite song.
Our older children range in age from 32-18, and after them comes our son, Peter, who is 11! Peter has Down syndrome, and once we learned all about the joys of Down syndrome, as well as the need for international adoption of children with disabilities; we became interested in pursuing that option as well. Here in the United States, there is a waiting list to adopt children with Down syndrome, but in other countries those children are often institutionalized. In Russia, at that time, children with Down syndrome were often sent to a psychiatric institution after the age of 5 or 6. That reality tore at our hearts. On top of that, Peter is much younger than his siblings, plus making friends requires lots of support, so we could see the value of a special inter-family friendship. It was a process that we started hesitatingly and prayerfully. Our agency happened to have a strong connection to China, so we eventually met our son Stephen through an assortment of little pictures and finally brought him home in 2014, which means he has been a part of our family nearly 7 years!
Peter and Stephen have grown up together! Stephen, who just turned 10, teaches Peter to be gentler, and Peter teaches Stephen to be more adventurous. Like Peter, Stephen has Down syndrome, and he has autism as well. He is almost completely non-verbal, although he can make noises to mean “Home” and “Mama”… we’re working on one for “Papa”, too!
The boys are little buddies, always playing together, inside and out. They are very different but have a lot of the same interests—which means they LOVE going to Jill’s House Blue Ridge Camp together! They’ve always gone together, which they really prefer. Their friendship is very sweet, which has been so important for each of them to have during the pandemic. We cannot even imagine what it would have been like for them to be on their own during this time.
The boys were planning on going to Blue Ridge Camp on March 13th 2020, the weekend that everything shut down! That was such a big heartbreak for us, that the world shut down on that particular weekend. That morning we had the boys’ bags packed and we thought that time at camp would be how they spent their weekend. We are SO glad to say that we have been able to come to Jill’s House Blue Ridge Camp since it reopened, which has been a joyful highlight for both the boys and for us.
Jill’s House is a place that we really have confidence—the staff are familiar with the disabilities that our children have, there is full understanding of the medical needs of our children, and the combination of fun and structure of Jill’s House is amazing. We are very fortunate that our boys are physically capable to go adventure around outside. We were stunned that there was a place that even existed like this, and the glowing recommendation of a friend is what drew us to it initially. She referred to it as “a spa for special needs children”—how accurate!
Jill’s House is such a unique operation. When we have told people in other places about Jill’s House, people who don’t have access to what we do through Jill’s House, they are amazed, because it’s hard to find programs like this. We are so grateful that we have such a wonderful thing—there really is nothing else like it. My husband, Chris, and I don’t have parents who are able to take the boys and care for them, and it’s helpful when an attendant comes to our home, but it is certainly nothing like what Jill’s House frees us up to do, including special events with our older children. It meant so much to our daughter that we drove up to her college to attend a parent’s event, were able to spend the night, and spend the next day with her—things we absolutely could not do without our boys staying overnight at Jill’s House Camp!