The King Family

Baby Simon - Jill's House Stories

Meet baby Simon

Meet Simon and Family

“From the moment my son, Simon, was born, I felt like God had been preparing my family for Jill’s House.

Peter and I are longtime attendees of McLean Bible Church and participated in fundraising events to build Jill’s House. This was before we had children. We attended fundraising banquets and Peter participated in a marathon to raise funds for Jill’s House. I was pregnant with our first child at that time, and we were excited about Jill’s House coming to the community. While we were supporting Jill’s House financially, we did not know God was preparing us to experience Jill’s House firsthand!

Young Simon

Young Simon

Fast forward several years, and the organization we grew to love and support, is now a respite for our own family and a safe haven for our son, Simon.”

“When I was pregnant with Simon, the pregnancy progressed as expected, however, toward the end, the pregnancy changed quickly. Simon appeared to be in distress, and as a result of an emergency C-section, was born 5 ½ weeks early. Shortly after delivery, we were shocked when the doctor told us Simon had physical features consistent with Down Syndrome. The room became still and quiet. The doctor peeked over the curtain at me and I said, “He is my son, and I will love him forever!” I knew in that moment God had given him to me, to us, to our family; we trusted in the promise that God works all things together for His good. A few days following Simon’s delivery, I read in the birth file, “Mother has accepted child.”

King Family Skiing

When Simon was born, he had significant respiratory issues and remained in the Neonatal Intensive Care Unit (NICU) for 5 weeks. When we finally brought him home, we adjusted to life with our fourth child. In addition to the typical needs of an infant, we initially focused on managing Simon’s medical needs: numerous specialist appointments, medications, speech therapy, occupational therapy, and physical therapy. Over time, as his medical needs stabilized, and he developed physically and cognitively, it became apparent that he required constant supervision to keep him safe. The amount of supervision Simon required exhausted Peter and I and left us with little energy for each other, or for our other 5 children, ages 3-12.”

“Simon is now 7 years old and is extremely active. He enjoys playing outside, swimming, going to the beach, and building with Legos. In addition, he plays Challenger Baseball, which is for children with differing abilities, and participates on the neighborhood swim team. This fall he trying football, too. Regular physical activity is essential for Simon!”

Meet Simon King

Meet Simon King

“We enrolled Simon at Jill’s House when he turned 6, and this past Spring, he had his first day camp and overnight experience. The timing was perfect; we were physically exhausted from his high level of activity, coupled with mental exhaustion due to a constant fear of elopement. We were discouraged by our limited options for respite.

During Simon’s first overnight at Jill’s House, we took our other children to a Japanese steakhouse for dinner. Since Simon’s initial camp and overnight stay, he has participated in school weeknights stays, summer camp, and another weekend stay at Jill’s House. Jill’s House has revolutionized our life! When Simon is at Jill’s House, we know he has a blast participating in activities he loves, and we can spend more focused time with each other, and our other children.”

Simon King

“I joined the Jill’s House Moms Community Bible Study, and my husband participates in the Jill’s House Dads gatherings. Other Jill’s House moms have been an encouragement to me. On the weekend retreat, one insightful mom shared that we live our life forward and understand it backwards. Looking back on our life with Simon, I can see how God has guided us through each and every day. God has never let go of our family.

Because of Jill’s House, our church, and local community, we have established relationships that love and support our family. We are eternally grateful to be part of the Jill’s House family.”

Thank you for making stories like Simon’s possible.

The Allard Family

Charlie and SisterMeet Charleigh and Family

“As a military family we have moved a lot, but we have been able to call Virginia our home since 2015. This past spring my husband retired from the Army, which means we could live wherever we want. But Northern Virginia has so many great resources, schools, and of course Jill’s House. There’s no reason we would leave!”

 

“We have 2 daughters, and my mother lives with us as well. Our oldest has gone off to college which means Charleigh, our 15-year-old daughter is the center of all our attention.

Charleigh is a happy, healthy girl who loves her iPhone, taking rides in the van to school, playing outside, and eating good food.”

Charleigh and Sister Younger“Before moving to Virginia, we lived in Oklahoma, which is where Charleigh was born, New York, and Texas. Charleigh was much younger when we received the first diagnosis of Severe ASD.”

“When Charleigh was 10 years old, we received an official genetic diagnosis. She has CDK13 which is an incredibly rare genetic disorder, with only 231 known cases worldwide. When she was younger, we actively pursued different therapies and doctors. We researched the genetic components of her diagnosis to provide the best care for her, and to help her achieve her milestones. Then when we moved to Virginia, a lot of opportunities opened for us. The resources are incredible! We had never really considered the scope of supports available for us here in Virginia.”

 

Charleigh and Ronald McDonald“Shortly after arriving in Virginia, Charleigh’s developmental pediatrician asked if we had heard about Jill’s House, which of course we hadn’t. Hearing about Jill’s House was a complete blessing!! We were so focused on providing the best care for Charleigh, that the idea of respite had never entered our minds.

Charleigh first started going to Jill’s House when she was 8 ½ years old. Her first visit was a weekend stay and she loved it! Our whole family loved it. She has been going to Jill’s House for almost 7 years now, so we have all grown to really appreciate and value those weekends.”

 

Allard_ Charleigh _4_“Jill’s House is set up to meet all Charleigh’s needs. She enjoys different activities and transitioning quickly between those activities. The staff are so attentive, kind, and patient with her. Charleigh is provided a mini vacation with play on the moon bounce, swimming in the pool, and fun outside on the playground. While Charleigh is at Jill’s House we enjoy a slower pace at home. We eat dinners while watching movies and enjoy quiet mornings.

Charleigh attends a private, day placement year-round school. Her school is so great, and best suited for her and her needs. Another benefit is that Jill’s House partners with her school and provides weeknight stays for students. Jill’s House staff pick up the students from the school, the students spend the night at Jill’s House, and then staff return the students to school the next morning. So, during the school year, Charleigh also gets to stay at Jill’s House one night a week.”

“Jill’s House has been the one constant in our lives for so many years. In fact, Charleigh has been going to Jill’s House for so long and she knows where her suitcase is, that whenever she’s angry with us or simply wants to go, she will grab her suitcase and drop it in front us as if to say she wants to go. Now! We love how much she loves going to Jill’s House.

Charleigh is safe and happy at Jill’s House, and we can relax knowing that she is receiving such wonderful care!”

Thank you for making stories like Charleigh’s possible.